Michael Bramhall

Michael is 24 years old with CF and 5 months post double lung transplant. Michael is from Nebraska, and loves fishing, hunting, exercising, and EMS. Michael also loves the outdoors and helping people. He was diagnosed at 4 months old and has a younger sister who is 20 years old, without CF.

• Michael never let’s his CF stop him from doing the things he enjoys
• In 2001 Mike began to understand the severity to his CF, due to a collapsed lung.
• Michael believes that with a life threatening disease “feel lonely at times” is typical, so you need an outlet like exercise to feel better.
• Michael states“Post transplant, is the best I have felt. Ever… I can finally breathe and have a great outlook on life” and he is extremely thankful to the donor.
• Michael believes “if he keeps working hard and exercising he can keep his new lungs healthy and have a great quality of life” Life with a life threatening disease is “difficult”
• Michael is happy to wake up every morning and enjoy life and thankful to his donor and family everyday

This educational podcast was made possible through an unrestricted educational grant from Allergan to the Boomer Esiason Foundation.

Adriane De Moerloose

 

Adriane is married with 3 children, and currently resides in North Carolina. She and her husband are the happy parents of 3 children. Alexis 7, Andrew 4.5, with CF, and Olivia who passed away 6 years ago from a rare heart disease. She currently enjoys running, biking, and hiking with her family. She also enjoys writing, listening to music and working out at the gym. She believes it is important to have inner strength and always be positive.

 

• Adriane and her husband, Peter, believed that they needed to “buckle down” and get ready for another battle when they found out their son, Andrew, was diagnosed with CF.
• She relied a lot on close friends and family. They also reached out to other parents who have children with CF.
• She focused on one thought: “How can I raise my child while he will be dealing with a chronic illness everyday”
• Andrew started to question his CF when he was 2.5-3 years old.
• Andrew’s treatments are “Non-Negotiable”
• He has begun teaching his peers about his CF and his treatments. He is a 3 year old CF Advocate

 

To learn more about Adriane and the ways she manages her mental well being, please listen to her podcast. 

  

This educational podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

 

In this podcast we meet Will Schlucter, a 26 year-old CF patient who owns his own gym, Will Power Strength and Conditioning. After years during his youth of taking breaks during athletics, Will decided, as an adult, to push through his coughing, expand his limits, and leave his comfort zone while working out - which led to a love of training himself and other people.

This video podcast/vodcast was made possible through an unrestricted educational grant from Novartis to the Boomer Esiason Foundation.

 

Today, you will meet Brayden Merrill, a 14-year-old with cystic fibrosis who stays healthy by playing soccer, track, and cross country. For someone so young, he is very open about his disease and uses it as a reason to train harder – uses it to his advantage as a motivation. His younger brother Noah (8) also has CF, and Brayden does everything he can to be a good role model and to teach him how to stay healthy.

This video podcast/vodcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

 

Today, we meet Sabrina Walker who is 30 years old living, breathing, and succeeding with cystic fibrosis in Anchorage, Alaska. Growing up, her parents encouraged her to stay active and play sports – not allowing her to make excuses about why CF would stop her. Sabrina’s mom is the person who sparked her love of running in order to keep her lungs clear. Not only does Sabrina battle CF on a day-to-day basis, she is also a cancer survivor, wife, and mother who keeps a positive attitude through it all.

This video podcast/vodcast was made possible through an educational grant from Gilead to the Boomer Esiason Foundation.

 

 

In this podcast, we hear from Jerry’s CF medical team about his journey with CF and life post-transplant. They share how they work as a team to make patients with CF feel cared for and supported. For Jerry, because of the extensive amount of time he spends with them, his doctors and nurses at Columbia University Medical Center have become like extended family – a group of caring individuals who tirelessly work to make sure he has a long, successful life.

This video podcast/vodcast was made possible through an unrestricted educational grant made from Gilead to the Boomer Esiason Foundation.

 

In this podcast, we meet some of “Jerry’s kids” – the young athletes he dedicates a great deal of his time to coaching in the sport of pole vault. Just as in his professional life, Jerry runs a tight ship… something his kids would heartily confirm. And it is that passion and dedication that inspires these athletes to work harder and longer than anyone else on the track. In turn, that hard work continues to inspire Jerry in his own life living with cystic fibrosis.

This video podcast/vodcast was made possible through an unrestricted educational grant from Allergan to the Boomer Esiason Foundation.

 

In this podcast, Mary Cahill – mother to Jerry Cahill – sits down to discuss what it was like raising a CF child among her other “normal” children. She shares the story of his diagnosis and the subsequent decision that she and her husband made to treat Jerry the exact same as his siblings – encouraging him to play sports and get out and be as active as possible. This decision led Jerry to live an active, healthy, and successful life, enabling him to get to where he is today.

This educational video podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Gunnar Esiason sat down with BEF CF Ambassador Jerry Cahill recently to find out more about his double lung transplant and the way his life has changed since he had the procedure 4 years ago. Jerry shares the many ways in which he has traded certain CF issues for complications that come along with any transplanted organs – and also reminds us that a transplant is not a cure; that he still has cystic fibrosis.

This video podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.

In this podcast, we hear from 24-year-old, Gunnar Esiason. He discusses how important it is for people with cystic fibrosis to remain compliant – with their medications, treatments, nutrition, and exercise. Gunnar also points out that airway clearance is one of the most important things he does to stay healthy and – outside of using a vest, percussor, and exercising – that he uses a machine called a frequencer. Check out the video to learn more!

This video podcast/vodcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

“I felt guilty I didn’t have the disease.”

To Sydney Esiason, there is no bigger duty of a sibling than to be the other’s biggest fan and supporter. While Gunnar has been in the spotlight for the majority of his life because of cystic fibrosis, Sydney has been there right beside him, cheering him on – quite literally. The duo attended the same schools all the way through Boston College. Tune in to hear Sydney tell her story of growing up as a sister to someone with cystic fibrosis.

This podcast was made possible through an unrestricted educational grant from Novartis to the Boomer Esiason Foundation.

“What Can I expect From My New Feeding Tube?”

The second episode of the Own Your Feeding Tube video podcast series will show you how I have had to make a few lifestyle changes after I had my feeding tube placed.

I agree, it can seem like a lot of work and even a little scary at first, but I can honestly tell you that living a full, healthy life with both CF and feeding tube can be done. Here, you will see what I have done to overcome any challenges that a feeding tube may present.

This video podcast/vodcast was made possible through an unrestricted educational grant from Nestle Health Services.

 

“Normalcy with a Feeding Tube”

In the third episode of the Own Your Feeding Tube video podcast series, you will see how I have been able to maintain my physically active lifestyle. Prior to getting my feeding tube placed, I had a fear that my life would change drastically. It did, but for the better. My health drastically improved, plus I saw my energy and activity level sky rocket. I was in the gym and on the ice only 6 weeks after surgery. While the feeding tube does require a little extra work outside of the realm of normal cystic fibrosis responsibilities, I am more than willing to give a little hard work for such incredible gains.

This video podcast/vodcast was made possible through an unrestricted educational grant from Nestle Health Science.

In the first episode of the Own Your Feeding Tube video podcast series, this “How-To” video will show how I am able to use my feeding tube in different situations. I cover two different types of “feeds,” bolus feeds and nocturnal pump feeds. Bolus feeds are quick and easy and can get me as much as 750 calories in just a few minutes. My nocturnal feeds typically run for about 7 hours and give me anywhere from 1500-2500 calories depending on how much formula I use.

I also discuss how the feeding tube system is undergoing a change to the ENfit connector system. The current ENfit transitional set has been introduced and has created many questions for tube feeders. In 2016, feeding tubes and their accompanying pieces will complete the total transition to the ENfit connector system, which is designed to improve patient safety. Hopefully this video can help answer some of those questions.

This video podcast/vodcast was made possible through an unrestricted educational grant from Nestle Health Science.

In this CF Podcast, we meet Bryan Warnecke – the young man with cystic fibrosis who was featured in the One Republic I Lived music video. He OWNS his disease every day by staying compliant and exercising. Active in various athletics, he is extremely passionate about ice hockey – a sport in which his team has won a state championship. Bryan’s goal is to become the first goalie with cystic fibrosis to play in the Olympics for Team USA.

This video podcast/vodcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.

In this podcast you’ll see how I have taken to the coaching word, despite dealing with cystic fibrosis. Growing up, I was lucky enough to have some great coaches along the way. They always knew how far they could push me – just beyond the breaking point. I owe a lot of my character and success in life to my mentors, especially my coaches. They taught me invaluable life lessons away from sports that I one-day hope to pass on to my athletes. Success is something that is attainable for everyone, but not without hard work.

This video podcast/vodcast was made possible through an unrestricted, education grant to the Boomer Esiason Foundation from Chiesi.

 

Meet Tim Sweeney, a 37-year-old personal trainer living, breathing, and succeeding with cystic fibrosis. Tim, who ran the NYC Marathon one year after his double lung transplant, and his wife Beth have had two children – Timmy and Harrison – using IVF. While there are not many resources for CF couples going through IVF, the Sweeneys want other people going through the same process to know that it can and does work; that people living with CF can successfully start a family.

his video podcast/vodcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

Meet Colin (11) and Sean (9) Randles – brothers who are living, breathing, and succeeding with cystic fibrosis. The brothers are active in sports, including baseball and basketball, and are constantly playing games like cops and robbers and tag outside with friends.

They both agree that the best part of having a brother with CF is that they are always there to encourage each other, to hang out in the hospital, and to help each other get better.

This video podcast/vodcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

Wise words given to CF mom, Whitney Randles, from her boys’ grandfather: “Special children are only given to special people.”

Pat Randle: “My biggest fear is that I outlive my children – simple as that; that shouldn’t be. And I don’t want that to happen. That’s where it begins and ends with the fear. I don’t want that to happen.”

* * *

In this podcast, CF parents Pat and Whitney Randles, discuss the challenges they have faced while raising two young sons with cystic fibrosis. While most parents face the normal ups and downs of learning to raise kids, the Randles had additional challenges when they were told that they oldest son, Colin (now 11), had CF. When their second son, Sean (now 9), was born with CF – they faced an additional set of trials, balancing schedules and medications, among other things.

The Randles are constantly learning the best way to raise their kids. They depend on one main phrase every day: “Do CF life first, then do your normal life.” By constantly challenging their boys to stay compliant and healthy, they are instilling skills both Colin and Sean will hold onto into the future.

This CF video podcast was made possible through an unrestricted education grant from Genentech to the Boomer Esiason Foundation.

Gunnar Esiason, 23 years old and living with cystic fibrosis, graduated from Boston College in May 2013. Originally planning to attend law school, he realized that he had driven himself into the ground during undergrad – forcing him to alter his plans.

Returning home to live with his parents, Gunnar decided to look into coaching high school football and hockey. After learning of an opening at his alma mater, he started work and immediately fell in love with the job and watching kids learn and succeed.

Today, Gunnar has found a balance that allows him to put his health and compliancy first while enjoying this new post-college, career phase of his life.

This video podcast/vodcast was made possible through an unrestricted education grant from Chiesi.

Meet Beau Rich – a 23-year-old filmmaker, actor, writer, musician, and traveler living, breathing, and succeeding with cystic fibrosis.

After a series of tests and hospital stays, Beau was diagnosed with CF at six months old. By the age of 11, he took up skateboarding and discovered that it was a fun way to stay in shape and clear his lungs. Today, Beau makes a daily effort to stay healthy by staying compliant and exercising so that he can live life however he wants. By using his portable vest and treatments, he is able to stay healthy on the go and is able to keep his body moving so that he can enjoy every single day.

This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

 

The Boomer Esiason Foundation (BEF) is launching its newest Team Boomer event series, Bike to Breathe, which kicks off with Jerry and Em’s Great CF Adventure – a journey that will take the two cystic fibrosis (CF) advocates on a 500-mile bike ride from Cary, N.C. to Baltimore, M.D.

Jerry Cahill and Emily Schaller will start their ride from the Chiesi USA headquarters, located at 1255 Crescent Green, Cary, NC 27518, at 10 a.m. on Monday, Sept. 15, 2014.

The Team Boomer event series encourages people with cystic fibrosis and their families to stay active and exercise in order to stay healthy.

Cahill is a 58-year-old CF patient and double lung transplant survivor who is living proof that an active, healthy lifestyle positively affects his quality of life. He is currently BEF’s CF Ambassador, volunteering for the Foundation to help the CF community in the here and now.

Schaller is a 32-year-old CF patient who started cycling, running, and exercising in 2007, when she was introduced to Cahill’s story, because she was “sick of being sick.” At the same time, she started the Rock CF Foundation to heighten public awareness about her disease and to raise money for research.

This podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

 

"You can expect to live a pretty long lifespan. So don’t waste it. Have some goals. Find your passion. And pursue it.” In this podcast, we meet Eric Hyman, a 36 year old who is living, breathing, and succeeding with cystic fibrosis. He shares a little bit of his background, interests, and what keeps him motivated to stay healthy and to keep a positive attitude even when things get difficult. He has learned to gradually share with people in his life about having CF – from friends to business and work associates. One of his favorite pastimes is playing music – which helps him keep his airways clear and his lungs healthy.

This video podcast/vodcast was made possible through an unrestricted educational grant from Novartis Pharmaceuticals Corporation.

 

In this podcast, Jerry discusses at-home spirometers, mainly the Spiro PD - a personal spirometer that empowers respiratory patients to monitor their lung function remotely and to comply with medication and treatment protocols.

• The telemedicine feature allows patients to upload their test results to their computer in order to better communication with their medical team.
• The Spiro PD measures FVC, FEV1, FEV1/FVC, FEF 25-75, PEF, % Predicted.
• Spiro PD's audible voice coaches patients using visual cues, voice prompts, and onscreen instructions during tests to ensure accuracy.
• Spiro PD life span is at least 5 years, depending on frequency of use.
• Spiro PD is small, lightweight (only 9 ounces) and designed for portability with a re-chargeable battery that lasts several days on one charge.

To learn more about Spiro PD, please visit www.spiropd.com

* A prescription is required for all US purchases. *


This video podcast/vodcast was made possible through an unrestricted educational grant from Genentech.

In this episode, we talk to Karen Vega from New York, who is 33 years old with CF, happily married and a mother of 3 always “on the go…” exercise enthusiast, and training for a ½ marathon. Karen never let CF get in the way of her living life to the fullest and keeping her dreams alive!

Podhaler Facts:

· TOBI Podhaler is a dry-powder treatment delivered in a disposable device.

· TOBI Podhaler is taken twice a day, and needs little setup and cleanup.

· The Podhaler is a great On-the-go device

· The unit does not require disinfection, refrigeration, power source, or batteries

· Administered in 2 – 7 Minutes (in clinical trials)

· 12.44% improvement in lungs · Helps to fight Psudomonas aeruginosa

· 64% reduction in percentage of hospitalizations

· 15% less need for intravenous (IV) antipseudomonal antibiotics

 

Jerry Cahill, a man in his late 50s, living, breathing, and succeeding with cystic fibrosis shares his journey through a double lung transplant. The drive behind his success is his ability to make the fight to live a competition and his gratefulness to his donor - living well and never giving up is his way to pay tribute to the person who lost his life so that Jerry could live.

Organ Donation Facts:

• 90% of Americans say they support donation, but only 30% know the essential steps to take to become a donor. 
• Every ten minutes, another name is added to the national transplant waiting list. 
• Nearly 1,800 children under the age 18 are registered on the organ transplant waiting list. 
• Eighteen patients die every day while waiting for a donated organ – an average of one person every 80 minutes. 
• Nearly 117,000 people in the United States are waiting for organ transplants – 1,668 of whom need lung transplants. 
• In spite of the 1,700 lung transplants performed in 2010, 233 patients died waiting for lungs. 

Despite continuing efforts at public education, misconceptions and inaccuracies about donation persist. Learn these facts to help you better understand organ, eye and tissue donation:

Fact: Anyone can be a potential donor regardless of age, race, or medical history.

Fact: All major religions in the United States support organ, eye and tissue donation and see it as the final act of love and generosity toward others.

Fact: If you are sick or injured and admitted to the hospital, the number one priority is to save your life. Organ, eye and tissue donation can only be considered after you are deceased.

Fact: When you are on the waiting list for an organ, what really counts is the severity of your illness, time spent waiting, blood type, and other important medical information, not your financial status or celebrity status.

Fact: An open casket funeral is possible for organ, eye and tissue donors. Through the entire donation process the body is treated with care, respect and dignity.

act: There is no cost to the donor or their family for organ or tissue donation.

To learn more about lung transplantation and organ donation, click here.

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Today, you will meet Stephen Bell, a 30 year old with cystic fibrosis, who is an avid runner and exercise enthusiast. Stephen has run 8 marathons in the last 5 ½ years, and attributes his health to his commitment to staying active. Running – something that was once used as a punishment in other sports – has become something that makes him feel free, and gives him time away from everything when he is feeling overwhelmed.

This video podcast/vodcast was made possible through the promotional support and commitment from AbbVie to the CF community.

In this video, Jerry discusses several methods of airway clearance that help people with cystic fibrosis avoid lung infections. Jerry finds the following methods extremely helpful in keeping his lungs clear: the vest, the flutter, the power lung, sinus irrigation, the percussor, and last, but certainly not least, staying active and exercising regularly.

This podcast has been made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

In July 2013, runners gathered for the third consecutive year for a race Central Park in New York City. Many of those runners were there to support the cystic fibrosis community, and they shared with us their many reasons for running. From lung health to stress relief, emotional well-being to freedom from their disease, all of these people have at least one thing in common: they run to fight cystic fibrosis.

This podcast has been made possible through an unrestricted educational grant from VERTEX to the Boomer Esiason Foundation.

In this episode, we talk with Katie O’Grady, a 17-year old senior at North Rockland High School in New York. Katie is an avid runner and is a member of the Red Raider varsity cross country and track teams. She talks about the role sports and exercise have played in managing her CF, but particularly how beneficial running has been in keeping herself healthy. 

• Katie’s first sport was soccer. She played for five years, but eventually gravitated away from soccer and towards running.

• Katie began running early in grade school, running side-by-side with her father.

• For Katie, running provides her with an opportunity to think and take in the outdoors around her.

• By the eighth grade, Katie was her school’s best competitive runner.

• Katie says running has helped keep sinus infections at bay, while improving her breathing.

• Aside from running, Katie keeps herself in shape through weight training, swimming, and biking.

• When she does get sick, running can be frustrating for Katie, but she stays motivated by remembering the fun times at past events, and the support she has from her friends.

• In 2012, Katie crossed the finish line at the New York City Half Marathon, running for Team Boomer.

This CF Podcast is made possible through an unrestricted educational grant from GILEAD to the Boomer Esiason Foundation.

For more CF Podcasts, visit www.jerrycahill.com

In this episode, we talk with Bret and Brennan Hatfield, both of whom are brothers and enjoying high school in Omaha, Nebraska. Bret is 15, Brennan is 17, and both are living, breathing and succeeding with cystic fibrosis.

• Brett and Brennan were diagnosed with cystic fibrosis when they were four years old.

• They acknowledge the challenge that cystic fibrosis presents, but are determined to lead normal lives.

• For both, being compliant means setting up and sticking to a daily schedule for taking medications.

• Some of their favorite things to eat for breakfast include biscuits, pop tarts, bacon, and a chocolate protein shake.

• Both brothers like to run at least two miles on the treadmill and lift weights together. At times, they can get competitive with each other.

• Brennan says one of the toughest parts about having cystic fibrosis is the time treatments take away from his social life.

• Brett and Brennan both swim during the winter to stay active.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Diagnosed at the age of 10 with cystic fibrosis, Lisa Ropers is now a happily married 33-year-old living in Holmesville, Nebraska. Lisa, in spite of dealing with the CF complication Pancreatitis, remains passionate about the fashion and retail management world. She loves going to the gym, doing yoga, and shopping – especially in second hand stores where she can find things to restore or ‘up cycle.’ 

• Pancreatitis is caused by pancreas not functioning properly and symptoms include nausea and pain. 
• “I deal with my pancreatitis by watching my fat and protein intake and by living more of a vegan lifestyle and I avoid dairy,” states Lisa.
• “I usually have to go into the hospital a few times a year when the pain gets severe, and I go on some antibiotics and NPO (nothing by mouth) for 4 or 5 days,” according to Lisa 
• Lisa suggests that people with CF eat better and avoid a high fat diet to keep their pancreas healthy.
• “My family and husband are a great support system for me when I am getting a severe attack as they help with all my errands and just comforting me. Oh yes, my 2 dogs and 2 cats also add support…”
• Lisa’s advice to people with CF…  “Don’t ignore it, don’t be in denial, and take care of you!”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

In this episode, we talk with Gunnar Esiason, a 21-year old senior at Boston College about the daily use of a feeding tube as part of CF treatment. While Gunnar continues to remain compliant and use the feeding tube, among other treatments, he has been living independently and has been enjoying college life for the past three years.

• Gunnar was diagnosed with CF at the age of two. He is now 21 years old and a senior at Boston College.

•  Gunnar made the decision to use the feeding tube during his sophomore year in college, shortly after enduring a serious lung infection and losing significant weight.

• The surgical process of inserting the tube culminated with the placement of a “button”, an external port allowing Gunnar to receive the nutrients he needs in liquid form.

• When the tube is initially put in, doctors gave Gunnar a “goal weight”, which is the ideal weight they would like to see him reach and maintain. Before the feeding tube Gunnar’s weight was at 142 pounds. Now, he is weighing 175 pounds. His goal is 185 pounds.

• During the day, the feeding tube provides Gunnar with anywhere from 500 to 1,500 calories. At night, Gunnar may ingest upwards of 2,000 calories and sometimes totals nearly 5,000 calories per day.

• Gunnar says the feeding tube hasn’t stopped him from leading a full life and enjoying college with his friends.

• Gunnar washes his feeding tube with warm or hot water in an effort to sterilize it.

• The only adjustment Gunnar says he has had to make is learning how to sleep at night while using the feeding tube.

Big thanks to Genentech for their support and for making this CF Podcast possible.

For more CF Podcasts, visit www.jerrycahill.com

In this episode, we talk with Lynne Sampson, Executive Director and CEO of the Pennsylvania-based non-profit HelpHOPELive. Lynne and her team at HelpHOPELive are passionate about providing assistance to transplant and catastrophic injury patients, helping to bring down the cost of medical expenses.

•    HelpHOPELive works to mobilize communities in their efforts to raise money for transplant and catastrophic injury patients around the country, thereby helping the patients cover the difference between what insurance can cover and what the family can pay.

•    HelpHOPELive teaches communities how to fundraise and encourages everyone in need of help to engage their communities early.

•    Last year, the organization oversaw 572 online events for patients

•    Through HelpHOPELive, communities raised $8 million in 2011

•    Sampson says many times communities want to help, but don’t know how to do it. 

•    Using HelpHOPELive, patients will be able to keep all funds raised as tax-deductible, meaning the funds will not count towards your income.

•    All funds raised through HelpHOPELive are secured by the organization’s financial team, providing donors a sense that their donations will be accounted for and used for their intended purposes.

•    Patients using HelpHOPELive also qualify for additional grants, including HelpHOPELive matching grants

For more on HelpHOPELive, visit www.helphopelive.org

For 56 years, Jerry Cahill has courageously battled cystic fibrosis while awaiting a life-saving double-lung transplant.

In April 2012, Jerry got the call. A new pair of lungs had become available.

As a testament to his courage and dogged perseverance, Jerry crossed the finish line at the 2012 Boomer's Run to Breathe 10K - barely three months removed from his transplant surgery.

Now, for the first time since that surgery, Jerry opens up about life before and after receiving a new set of lungs.

July 21, 2012

Central Park
New York, NY

In its second year of existence, the Boomer's Run to Breathe 10K saw over 5,000 runners come out in support of the Boomer Esiason's fight against cystic fibrosis.

Among them, Jerry Cahill - a 56 year-old living, breathing and succeeding role model to the cystic fibrosis community. Barely three months after receiving a double-lung transplant, Jerry took to the pavement in Central Park and completed a challenging 10K.

Today, Jerry continues to inspire the CF community through his involvement in high school coaching,Team Boomer (www.esiason.org/teamboomer) and his newest initiative, You Cannot Fail (www.youcannotfail.com).

Follow Jerry through the CF Podcasts (www.jerrycahill.com), CF WindSprints (www.cfwindsprints.com), and via Twitter (@bigair).

April is "National Donate Life Month," a celebration which took on new meaning today when the Boomer Esiason Foundation's Jerry Cahill underwent a double-lung transplant.

Jerry, 55 and living with cystic fibrosis, is a volunteer who manages BEF's scholarship and transplant grants programs. He also founded the Team Boomer - Fighting Cystic Fibrosis athletic program, hosts a regular CF podcast and produces the CF Wind Sprintvideo series. In addition, Jerry last fall launched the You Cannot Fail: You Are the Hero of Your Own Story campaign.

Jerry's surgeons earlier today reported that the transplant procedure was a success and that Jerry has been transferred to the intensive care unit at Columbia University Medical Center.

Please join with us in sending thoughts and prayers to Jerry, his family, his medical team and the donor's family during the critical post-op time period. For updates on Jerry's recovery, please visit the BEF Facebook page.

We also invite you to visit Jerry's page in the CF Stories section of our website, where you can view his You Cannot Fail video and read through his complete biography.

Colleen Caul was born into a big Irish family in St. Louis, Mo. Growing up, Colleen was always active, but her whole life changed in 2004, when her uncle started to coach her little sister, Katie Rose, how to run. Katie Rose has cystic fibrosis. Elated to see the positive effect that running was having on her sister’s health, and inspired by their dedication, Colleen started to run.

In the past five years, Colleen has completed four marathons and recently completed the “Run for Roses,” a 65-day running pilgrimage to spread awareness, raise funds and share stories about cystic fibrosis.

Colleen founded the Run for Roses Foundation (www.runforroses.com) to support her efforts to raise funds toward a cure for CF.

-    In honor of her sister, Katie Rose, Colleen ran from St. Louis to New York City from July to September 2011. She ran 1,000 miles in 65 days for one dream: to cure cystic fibrosis.
-    Colleen ran 15.5 miles each day, and her stretching routine was about three hours a day. She ate Starburst candy for energy during her runs and refueled with chocolate milk.
-    During the 65-day run, Colleen blogged with friends and fans. In Ohio, she had the opportunity to run with a family that has two children with CF. “It was amazing, they both ran four miles with me,” Colleen says.
-    “People with CF never have a day off … when things got tough during a run, I just thought of that and said I can do it!” she says.
-     “Crossing the finish line in New York City was incredible,” Colleen says. “Katie, family and friends joined in for the last five miles – it was an out-of-body experience that I will never forget.”
-    The overall message Colleen wants Run for Roses to communicate is HOPE & POSITIVITY.


This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Josh Mogren: Moving Forward After Losing a Sister to CF

Josh Mogren is a 32-year-old with cystic fibrosis and cerebral palsy. Josh, who lives in St. Paul, Minn., discusses overcoming all obstacles with CF, including the loss of his sister, Angela, to CF. Josh has been happily married to Carly for five years, and also enjoys the company of their two dogs and the puppet, “Moganko.”  Josh has a blog (www.welcometojoshland.com), is a movie buff, enjoys singing karaoke, and is LIVING BREATHING & LOVING LIFE. 

• Josh was diagnosed with CF at birth; his older sister, Angela, also had CF.
• Josh has fond memories of his Angela: “Angie was strong-willed, very funny and a real prankster. My sister taught me to be a strong advocate for myself, and that is very important when you have an illness like CF,” Josh says.
• “Growing up, Angie was a lot sicker than I was, and that was very frustrating for her. I felt terrible about it ‘cause I was doing so much better – it was not fair,” he says.
• Josh believes it’s ok to be sad but that people with CF have to keep fighting and be HAPPY! 
• “Having fun and making light of things is the key to being happy. That is why I created my blog and YouTube site (“Welcome to Joshland”). I share a lot of my thoughts and stories about my life, CF, and otherwise,” Josh says. 
• Josh appreciates things a lot more since the loss of Angie, and he feels blessed to have a great family and friends.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Jerry Cahill has been an inspiration to the CF community for many years.  His message of living, breathing, and succeeding has touched the lives of many people living with cystic fibrosis.

Recently, we tagged along with him on the way to Milwaukee, where he spoke to packed house at Children's Hospital of Wisconsin.  Jerry's message was clear - everyone with CF should be exercising and getting involved in the CF community.  Jerry talks about his lifelong struggle with CF and his no-nonsense approach to managing CF on a daily basis.

To learn more about Jerry Cahill, the Boomer Esiason Foundation, and cystic fibrosis, be sure to visit our website at www.esiason.org. Share your thoughts and stories with Jerry by e-mailing him at jcahill@esiason.org.

Valerie Batz, a 52-year-old with cystic fibrosis (CF), received a double lung transplant 13 year ago. In this podcast, she discusses life “pre and post” her transplant.

Valerie has been happily married for 24 years and is the proud mom of healthy twins who are now 22 years old.  Valerie studied in Paris, majoring in international business, She speaks three languages and has worked for an international computer company. Val’s passion is cooking, especially Italian food, and her dream vacation is to return to Paris for her 25th wedding anniversary.

Valerie is living, breathing and succeeding in Illinois with her beautiful family, and although she still has CF, she breathes easier with her new lungs.

-    Valerie was diagnosed with CF at 22 months old. “I’m grateful to my parents who raised me with high expectations, and treated me like a normal child,” she says.
-    Pre-transplant, Valerie was always sick, everything was an effort, and due to lack of oxygen, she always was tired. “Life pre-transplant was overwhelming, as my FEV’s were less than 20 percent,” Valerie explains.
-    Growing up, Valerie was active in swimming, cheerleading and skiing. Post-transplant, she stays active by biking.
-     “Transplant is not a cure … you trade one disease for the other, but this disease is better, I can breathe,” she says.
-    “Life post-transplant initially is a little bumpy, but you will get through it and it is worth it,” Valerie says.
-    Valerie’s advice: “Don’t touch your face, eyes, nose … that is how we all pick up germs and get sick.”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Living, Breathing, and Succeeding for 100 podcasts!

We salute Jerry Cahill, an inspiration to many inside and outside the cystic fibrosis community!

Jerry started the CF Podcast in 2005.  Since then, they've grown in popularity and given a voice to people with CF.  More importantly, they've given hope to thousands who struggle with cystic fibrosis on a daily basis.  If you've missed a podcast, you can catch all of them online at www.jerrycahill.com.

Living.  Breathing.  Succeeding.  Congratulations, Jerry Cahill.

For more information on cystic fibrosis, Jerry Cahill, or the Boomer Esiason Foundation, be sure to visit our website, www.esiason.org.

Gunnar Esiason, a 19-year-old with cystic fibrosis, is a sophomore majoring in English at Boston College. Gunnar is physically active in intramural sports, works at being compliant, and loves college life.

• Gunnar was diagnosed with CF at the age of two. He had a normal childhood and played lacrosse, baseball, football and ice hockey. Gunnar, despite the usual frustrations, never lets CF get in his way from leading a normal life.
• Gunnar feels very comfortable living with roommates in a dorm setting and sharing about cystic fibrosis. “Having roommates just adds to the whole college experience … I would not do it any other way,” he says.
• “Going away to college has taught me to be more independent, and be responsible for doing my medications, airway clearance, getting enough rest, cooking and proper nutrition. I don’t want to get sick, so I have learned to take responsibility for my actions,” Gunnar says.
• Gunnar values sleep and tries to get nine to 10 hours a night. His priorities are staying healthy, academics and socializing. Regarding socializing at college: “You have to make the right decisions and avoid people who smoke.”
• Gunnar on telling people at college he has CF: “I am straight up with them and keep it simple – it’s a respiratory disease. Telling people I have CF helps them and myself grow – that is part of the college experience …”
• Gunnar’s role models: “My parents and my sister Sydney [also attending BC]. They BELIEVE in me and are always telling me I can do it. My family is the best and they always push me to take care of myself.”
• Gunnar’s advice to others thinking about going to college: “Do it – go to college and experience it! If you have the opportunity to go away to school – do it! Be independent and your own person – you will grow as a person.”
• Gunnar on Gunnar: “I am a nice person, I enjoy living life to the fullest and I have no regrets … It’s all about going forward and not living in the past …”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the fourth in our third season and is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Courtney Ward Runs NYC Marathon for Team Boomer in 4 Hours 56 Minutes

Laps for CF Foundation
...on the road to a cure...

The Laps for CF Foundation is an organization based out of Birmingham, Alabama that fights Cystic Fibrosis everyday.  Together with CF supporters across the United States, the laps for CF Foundation raises money and awareness for Cystic Fibrosis.

• The money the Foundation raises is awarded to 3 main organizations: The Cystic Fibrosis Foundation, CF Hope for Alabama, and CF Care Clinics.
• Emily Schreiber was diagnosed with cystic fibrosis in the winter of 2003. After diagnosis and reading a  book called Karen's Ride - where a young girl, Karen, raised money for her local hospital... Emily decided  to do the same for Cystic Fibrosis.
• The first year Emily swam at Wald Park in Vestavia, Alabama and raised over $60,000.
• In 2005 Emily swam with the Auburn University swim team and raised over$220,000.
• Emily plans on teaming up with the Boomer Esiason Foundation to combat cystic fibrosis by launching Swim-a-Thons with 15+ Universities across the nation.
• For more information: www.lapsforcf.org
• E-Mail Emily at: emily@lapsforcf.org

My Podcast Alley feed! {pca-c360b5469328cb89aa7d70dfb79fc069}

Title: With Every Breath – stories about people living with cystic fibrosis.

Katherine Russell is 16 years old with cystic fibrosis, from Buffalo, NY. Katherine’s book has a wide variety of writers from young, old, parents, patients, doctors, and friends. It demonstrates how the individual with CF as well as family and friends deal with CF.

This book is very inspirational and educational for all involved in the world of cystic fibrosis.

• Katherine is an outgoing young lady that swims on 2 teams, snowboarding, and loves socializing with her friends, music (cello) and writing.

• Katherine attends high school and is a volunteer on the CF advisory panel at Children’s Hospital of Buffalo to help work towards better CF care.

• “I want to travel to South Africa and Europe someday? states Katherine.

• In Katherine’s book With Every Breath, the stories range from recounts of having a child diagnosed with CF to being a patient receiving a transplant.

• Some stories simply share advice and perspective, while others share stories of travel, success, understanding, and change.

• For more information on the book contact Katherine Russell:
  www.lifewitheverybreath.com

Title: Give the Gift of Life…

A Plea to Encourage Organ Donors - Charlie Stockley, Priority Recipient on National Organ Donor List, in Immediate Need of Lung Donor and Transplant

With most people focusing on getting through the holiday season, Charlie Stockley, 38, is fighting to get through another day waiting for a new set of lungs. Charlie is on life support and in immediate need of a lung transplant at Stanford Medical Center in Palo Alto. Charlie is up against his toughest battle with cystic fibrosis (CF). Although he is a priority lung transplant recipient on national organ donor watch lists, his condition remains tenuous as symptoms from CF complicate his recovery and threaten his life. Charlie has been on a life preserving ventilator since Tues, Dec 12, 2006, and a lung match has still not yet become available.

• Charlie has been a tough fighter of this progressive, life-threatening lung disease, and has a lot to live for.

• He met the love of his life 18 months ago, Margie Roper, and they are getting married on March 10, 2007. Charlie can’t wait to make a new home with Margie, and her two children, Michael and Amber who he loves very much.

• Charlie grew up in Livermore, CA and has resided in San Francisco for over 10 years.

• He works as an audio designer at Electronic Arts and has been a professional drummer for numerous bands, including Mojo Deluxe and Mad Dog Toor.

• Please visit www.CharlieStockley.com

• For more information and updates: info@charliestockley.com

December is the month of giving. We encourage everyone to make sure they are registered to show it’s important to them that others are given the opportunity to live a full and productive life. Charlie’s friends and family would greatly appreciate you getting the word out in anyway you can, as soon as you can.

Here are a few things to do:
1.  Take 3 minutes to sign up online to be a donor (by state). In California go to www.donatelifecalifornia.org. Other states, go to: www.donatelife.net
2.  When you sign up online, notify friends and family via email
3.  Tell your family members that you have decided to become a donor so they will understand your decision and support it.
4.  Say yes to donation on your driver’s license
5.  If tragedy should strike someone you know, please think of Charlie, and hundreds of people like him waiting for an organ, and encourage them to give the gift of life.

Passing of Charlie Stockley
From www.charliestockley.com
Charlie Stockley passed away on the night of December 24th, 2006. We fervently believe that Charlie's courageous battle with Cystic Fibrosis has inspired countless people to register as the organ donors that someday might save the lives of others in his situation. Although Charlie didn't receive the lungs he so desperately needed, we know he would be happy if only one person was helped by his struggle. Charlie's family wishes to express their most sincere gratitude for the love, prayers and support that sustained them during their difficult ordeal and demonstrated how many lives were touched by this remarkable man. Please honor Charlie's memory either by registering as an organ donor or making a contribution to any chapter of the Cystic Fibrosis Foundation.

Thanks to all who attended Charlie's Memorial Service & Life Celebration in Livermore on Saturday, January 6th, 2007. What a sincerely beautiful & glorious gathering! Thank you for the memories & memorabilia, all the music, the laughter & tears, your warm hearts & loving arms. A true testament to the power of one. You are invited to view photos from the celebration here.

Donal Dennehy celebrates with Joe Kelly at Mr. Dennehy’s Pub located at 63 Carrmine Street in Greenwich Village NYC. The 1st Annual Post Marathon Party was a huge fundraising success for the Boomer Esiason Foundation’s Exercise for Life scholarship program for people with cystic fibrosis.

1.   Joe Kelly runs his first marathon for Team Boomer – Fighting Cystic Fibrosis in under 4 hours

2.   The Boomer Esiason Foundation presents Joe Kelly with an autographed football by Boomer Esiason for his great cause

3.   Donal Dennehy accommodates the Boomer Esiason Foundation at his restaurant to help raise funds for people with CF

4.   Donal is presented with a game ball for his commitment to the fight against cystic fibrosis

5.   The event was a huge success raising over $5,000. for scholarships and a fun time was had by all.

6.   Donal states “This is the first of many fundraising events that Mr. Dennehy’s will partner up with the Boomer Esiason Foundation to raise money for a cure.

For more information on Mr. Dennehy’s go to: www.mrdennehys.com

MR. DENNEHY’S TO HOST TEAM BOOMER - FIGHTING CYSTIC FIBROSIS POST- NYC MARATHON BENEFIT


- On Sunday, November 5 from 7:00 PM to 9:00 PM, Mr. Dennehy’s located at 63 Carmine Street @ Seventh Avenue in New York City’s West Village will host a post-marathon celebration to benefit Team Boomer- Fighting Cystic Fibrosis.

- The event is open to the public and ticket price is $25, which includes a two-hour open bar. All proceeds from the evening will go directly to the Boomer Esiason Foundation (BEF) to support the Exercise for Life Scholarship for individuals with cystic fibrosis.

- Joe Kelly, an employee at Mr. Dennehy’s, will be representing TEAM BOOMER in the marathon along with many other international runners.

- Team Boomer – Fighting Cystic Fibrosis was developed by BEF and is a USATF-registered competitive club.

- Those who are a part of Team Boomer participate in various races, obtain sponsors, and donate the pledges they receive to BEF. Team Boomer is designed to promote exercise and help raise funds for the Exercise for Life scholarship program for people with CF.

- BEF is a leader in the area of academic scholarships and transplant grants and is now being proactive as the frontrunner in the area of exercise for individuals with CF.

- Mr. Dennehy’s, located at 63 Carmine Street at Seventh Avenue, is a traditional Irish pub and restaurant known for its live music, great food and charming bartenders.

- Mr. Dennehy’s has received rave reviews from Time Out New York, New York Magazine and CitiSearch and is a New York pub that’s not to miss.

For more info:

o Call: 212-414-1223

o www.mrdennehys.com

o donal@mrdennehys.com

Title: CF Education Day comes to NYC


When: October 15th 2006 from 11am to 4pm
    
Where: The Yale Club in New York City

Info: cfday2006@aol.com

Phone:  800-622-0385

Come hear nationally recognized speakers at this one time event.
The event is free and includes lunch
Everyone must register to attend
Speakers will discuss:
o     ways to obtain health insurance and make it cover treatments needed to fight CF
o    Laws that protect children with CF in school
o    Strategies for living a successful life with CF
o    New drugs on the CF Horizon
o    Treatments and care of children and adults with CF

Due to cross infection no one with CF can attend this event.
To find out other ways adults with CF can participate in this event please contact: cfday2006@aol.com or call: 800-622-0385

TEAM BOOMER – FIGHTING CYSTIC FIBROSIS
USA Track & Field Club #06-1114


Millions of people worldwide are marathon runners…
Millions of people worldwide jog, bike, swim, and exercise…
Some people jog to stay in shape…
People with cystic fibrosis jog to BREATHE!

Because I have cystic fibrosis I want to prove that I can breathe.
-Jerry Cahill/Age 50 Cystic Fibrosis Podcast

Team Boomer – Fighting Cystic Fibrosis was developed by the Boomer Esiason Foundation (BEF) and is a USATF-registered competitive club. BEF is a leader in the area of academic scholarships and transplant grants and is now being proactive as the frontrunner in the area of exercise for individuals with cystic fibrosis (CF). Team Boomer is designed to promote exercise and help raise funds for the Exercise for Life scholarship program for people with CF, which helps them pursue their academic dreams.

As an athlete, Boomer Esiason knows how important exercise is for improving health, especially for those with cystic fibrosis. Participating in sports and physical activity helps increase the quality of life and health, and teaches discipline. Like athletes’ dedication and daily regiments on the playing field, CF patients must be compliant to daily therapy and medication routines. Your lungs are muscles and need to be worked to keep them clear and strong – exercise should be part of EVERYONE’S daily routine. Team Boomer’s goal is to improve the quality of life and increase the lifespan of individuals with CF through the power of daily physical exercise.

By sponsoring an athlete, you are helping the Boomer Esiason Foundation and Team Boomer raise money for the Exercise for Life Scholarship.

 

Join Team Boomer Today

Team Boomer Donor Sheet

Team Boomer Pledge Sheet

Team Boomer Sponsor Sheet

 

Title: CFRI TEEN & ADULT DAY RETREAT

The CFRI Retreat is August 6th and 11th in Menlo Park, California for teens, 15-18 years and adults with cystic fibrosis, their family members and health care providers. The event is fun, educational and a safe environment to meet some great friends!


The retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF.

Activities include daily exercise, arts & crafts, rap sessions, and educational workshops with guest speakers.

Cost is $65  per person for entire week.

Scholarships available.

Safety is a top priority: ALL people with CF are required to comply with cross infection behavioral precautions. A medical advisor is available at all times, and volunteers are available to assist with respiratory treatments.

For more info: http://www.cfri.org/home2.html

 

Living Breathing Proof

Celebrating my 50th Birthday !

Remember - Compliance, Nutrition, Exercise and Determination are the keys to having  a great quality of life with cystic fibrosis

Exercise For Life CF Athletic Scholarship

Presented by the Boomer Esiason Foundation

Details Coming Soon!

Pictured on Right (Left to Right) Jerry Cahill with Lisa Yourman, Dr. Joan Germana and Boomer Esiason.

 

 

 

Heroes of Hope Award Photo Gallery

share.shutterfly.com/action/welcome?sid=8AbOW7Fq4buXFg

 

This Story appeared in Heroes of Hope Blog...

 

Heroes of Hope – Living with CF

49-Year-Old Brooklyn, New York Resident with Cystic Fibrosis Receives National Award

The Heroes of Hope TM Living with CF Program Advisory Panel is pleased to announce Jerry Cahill as the January 2006 award recipient in recognition of his positive attitude and tenacious spirit, The Heroes of Hope program honors people with cystic fibrosis (CF) who give hope to others. Jerry was chosen from a nationwide pool of candidates for his ability to inspire others with CF through his positive attitude, commitment to proactively manage his health, determination, community outreach, and achievement.

Jerry states:
“I wanted to thank the Heroes of Hope Committee and Genentech – makers of Pulmozyme – for this honor?

“I also wanted to thank my family, friends, doctors, and the Boomer Esiason Foundation for ALL your support?

“I share this award with every person with cystic fibrosis that is living, breathing, and fighting everyday to win the battle with this disease?


For questions regarding the Heroes of Hope – Living with CF program, please call 1-866-288-1893
Or visit the web site: http://www.pulmozyme.com/hoh/hoh_landing.jsp

Jerry's Speech

HEROES OF HOPE (Living with CF)

I wanted to thank the HEROES OF HOPE Committee and Genentech – makers of Pulmozyme - for this honor…

I also wanted to thank my family & friends, doctors, and the Boomer Esiason Foundation for all your support…

In the past I have received awards for pole vaulting over 16’0? and increasing sales volume from $26M to $29M but it is a little eye-opening to get an award related to “living with a disease?… so I thought about it and looked up the definition of “HERO? in my Webster’s pocket dictionary.

Hero – one that is much admired or shows great courage.

This award needs to be shared with many…

1.) I share this with every person with cystic fibrosis that is living, breathing, and fighting for survival as it takes a lot of courage & work both physically and emotionally.

2.) My family, in particular my MOM, they are all heroes as they had to deal with a lot on a daily basis growing up…I remember being diagnosed at age 11 and the doctors telling my parents “you are lucky if your son lives to be 18 years old?, WELL… I am 49 and still here today and don’t plan on loosing the battle with CF any day soon. I owe a lot to my family because they never put me in a bubble and kept me very involved in sports – I thank you…

3.) My sister Laurie and friend Mike who help me out alot when I need extra physical therapy when I am sick and really should be in the hospital – thank you

4.) My doctors… I had and have many – one past away, one retired, and some never partnered up with me so I moved on

Dr. Schulman, who I have been with for over 7 years - he has been a great partner and deals with a lot of issues – he has his hands full with me as I am not an easy patient – I thank you, it’s a delight working with you as a doctor – I consider you a friend

5.) The Boomer Esiason Foundation for your support and giving me a “safe haven? by letting me volunteer and empowering me as I await a Lung transplant.

That leads me to the definition of HOPE...

HOPE – desire with expectation of fulfillment

In receiving this award, my hope is that PARENTS of children with CF will NOT feel guilty and NOT cover their loved one in bubble wrap but let them live life to the fullest!

And for individuals living with CF my hope is that ALL will be very compliant to there medications/therapies and get involved in VIGOROUS EXERCISE on a daily basis.

I believe, that through daily exercise, everyone with cystic fibrosis will be LIVING, BREATHING PROOF that can have a full and productive life while we wait for a cure.

THANK YOU

It's people like you that make life so special... Wishing ALL moments of pure happiness, health, and love this holiday season

Holiday Photo Album

The “Pod Daddy? wants to hear your comments on the Cystic Fibrosis Podcast.



Please click on comments or email me at jcahill@esiason.org and let me know your thoughts and what you want to hear more about.



Recent comments:

I really love the podcasts! These things are exactly what kids and young adults with CF need to see and hear. I can’t tell you how often I fell alone in my fight with CF. Your site, I think, is out there to give the same support that I found in my family. This site has so much hope in it! (Ohio)


I really like your site – it’s very informative. (Louisiana)


I am impressed with the podcasts and would like to hear more about CF individuals with digestive, kidney, and liver issues.

I found the podcasts ‘fascinating? It was wonderful to listen to the inspirational stories of others LIVING with cystic fibrosis. I found it incredible how open and honest the people you interviewed were.

“WOW!?

Check out the September 12th issue of NEWSWEEK (page 64). There is an article about people with CYSTIC FIBROSIS who are living well into adulthood - more LIVING, BREATHING PROOF!!!!!! http://www.msnbc.com/id/9189605/site/newsweek

16 year old Erin Keitges has overcome cystic fibrosis to become one of Nebraska's top distance runners. Her inspiring story is coming soon to Jerry Cahill's Cystic Fibrosis Podcast.

I recently had doctor appointments at the University of North Carolina Adult CF Center in Chapel Hill. I was very impressed with the precautions that the center is taking to avoid the spread of infection among CF patients. The center has a phenomenal hand out entitled: "INFECTION CONTROL". I highly recommend EVERYONE read this memo. The Boomer Esiason Foundation has placed it up on their website: www.esiason.org. Once you are on the site click on "NEWS", go to "CF RESOURCES" and click on "INFECTION CONTROL". The Adult CF Center at UNC is the most impressive and professional adult center that I have encountered in my 49 years living with CF.

Stay tuned for an empowering interview with 17 year old Ashley White as she awaits a double lung transplant at Duke Medical Center and another interview with her mom, Lisa White who gives her daughter much love, strength, and support.

I just received my new T-shirt that says "CF Sucks" and it does...
I have been on iv antibiotics for over 4 weeks and still have a lot of congestion... I am at the point these medications don't work - WE NEED NEW DRUGS!!!

Get ready for MORE!!! New and informative interviews set with vivacious, Kristy Denninger, 28 years old with CF and Amy Purdy, CF Social Worker at prestigious St. Vincent's CF Center

Sorry for the delays but I have to start some iv antibiotic therapy today of Ceftaz and amikacyn - thank God for ports as I am tired of getting stuck with needles for iv's. Just to let you know I will have the new interviews up and running by next Tuesday Interviews: Laura Cianci - homecare iv infusion nurse and K - 32 year old male with CF

I will have some new and exciting interviews coming your way within the next week. I am finalizing an interview with a 32 year old young man with CF and another chat with a CF doctor that has been involved with CF for over 50 years and has experienced a lot of transformation.

Allergy season is kicking in and I always get a lot more wheezing this time of year. I have found that doing aerosol treatments of hypertonic saline (3% and 10%) 6 times per day vs. 4 times helps keep my airways a little clearer.

Stay tuned later this week for an exciting interview with a cystic fibosis individual that is the recipient of a double lung transplant. Learn first hand what one person has gone through pre and post transplant.

Welcome! My name is Jerry and I am 48 with cystic fibrosis and listed for a double lung transplant. My goal, while my health permits, is to share with all of you my ups & downs with CF and how I have "beaten the odds" and "living life to the fullest". Stay tuned for information as I get more familiar with the system and I welcome your comments.