Stay tuned for an empowering interview with 17 year old Ashley White as she awaits a double lung transplant at Duke Medical Center and another interview with her mom, Lisa White who gives her daughter much love, strength, and support.

Jerry Cahill interviews Amy Purdy


Amy Purdy has been a social worker at Saint Vincent’s CF Center, in New York City, for over 8 years and “loves helping people?

• Amy grew up in Long Island, NY
• SUNY Albany undergraduate degree
• Adelphi University graduate degree in Social Work
• St. Vincent’s has over 170 cystic fibrosis patients where Amy works full time for the center.
• Amy has great relationships with her patients and knows “what there favorite flavor is in bubble gum?
• Amy deals with various issues including; medical insurance, medication compliance, educating families on CF, transplant issues, and “just being there? for the patients?.
• Amy states: “Teen years are critical for medication/therapy compliance, as this sets the stage for your future health?.
• St. Vincent’s has a “phone a friend? program for CF teens to speak to adults with CF
• Amy’s goal: “Take the burden off the young adults by becoming like a personal assistant?
• Amy’s advice to families: “Use ALL the resources at your CF Center?

I just received my new T-shirt that says "CF Sucks" and it does...
I have been on iv antibiotics for over 4 weeks and still have a lot of congestion... I am at the point these medications don't work - WE NEED NEW DRUGS!!!