54 Years Old and Living-Breathing Succeeding With Cystic Fibrosis
Episode #0053 Adult CF Family Day - MOV File

Title: Adult Cystic Fibrosis Day


Baylor University Medical Center in Houston, Texas held a ground breaking event with the first ever Adult CF Day. This educational event featured Boomer Esiason and Dr. Marcia Katz speaking about how we are "living a medical miracle" with 40% of the CF population being adults and living longer with a better quality of life.

  • Adults with CF are attending college, have careers, and having families.
  • Adults with CF maintain a "positive mental attitude" and keep raising the bar.
  • With the explosion of the adult CF population "transitioning" to an adult program is crucial.
  • Adults with CF are living longer and maintaining a better quality of life.
  • Adults are mentors for younger individuals with CF and their families.

     

Direct download: CF-FamilyDay.mov
Category:podcasts -- posted at: 4:49pm EST

Title: Adult Cystic Fibrosis Day


Baylor University Medical Center in Houston, Texas held a ground breaking event with the first ever Adult CF Day. This educational event featured Boomer Esiason and Dr. Marcia Katz speaking about how we are “living a medical miracle? with 40% of the CF population being adults and living longer with a better quality of life.

  • Adults with CF are attending college, have careers, and having families.
  • Adults with CF maintain a “positive mental attitude? and keep raising the bar.
  • With the explosion of the adult CF population “transitioning? to an adult program is crucial.
  • Adults with CF are living longer and maintaining a better quality of life.
  • Adults are mentors for younger individuals with CF and their families.

Direct download: CF-FamilyDay.wmv
Category:podcasts -- posted at: 4:28pm EST

Episode #0052 Kyle Connolly Interview

Title: Kyle Connolly Talks about being Compliant, Exercise, and College Life.


Kyle Connolly is a 21 year old college student that “stays clear? by doing aerosols and vest treatments 3 times per day and exercising on a daily basis to keep his lungs clear. Kyle works very hard to stay healthy so he can have a better quality of life and enjoy!

  • Kyle was diagnosed at 7 weeks due to “failure to thrive?
  • Growing up with CF was non-eventful until high school when he started having more infections.
  • Kyle attends Xavier University in Cincinnati, Ohio and will be a senior next year.
  • “Being involved in sports all my life has helped keep my lungs clear!?
  • Kyle participated in football, baseball, soccer, wrestling, and cross country growing up and now is a varsity cheerleader at Xavier University.
  • Kyle also enjoys running and competes in the FLYING PIG MARATHON every May in Cincinnati, Ohio. Kyle is part of a team and runs the ½ marathon (13.1 miles)
  • “Time management is the biggest challenge I face daily living with CF but I just do it – I have no choice if I want to enjoy everything life has to offer? states Kyle.
  • Kyle is very excited about all the new drugs in the pipeline for people with CF.

 

Direct download: CF-KyleConnolly--06-12-07.mp3
Category:podcasts -- posted at: 4:06pm EST

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