54 Years Old and Living-Breathing Succeeding With Cystic Fibrosis


Living Breathing Proof

Celebrating my 50th Birthday !

Remember - Compliance, Nutrition, Exercise and Determination are the keys to having  a great quality of life with cystic fibrosis

Category:general -- posted at: 4:43pm EST

Exercise For Life CF Athletic Scholarship

Presented by the Boomer Esiason Foundation

Details Coming Soon!

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Episode #0037: Schneider Children's Hospital of North Shore LIJ Health Systems CF Nurses

Schneider Children’s Hospital of North Shore LIJ Health Systems CF Nurses


CF Nurses “embrace patients and family? and form a “partnership?

Jerry Cahill interviews CF nurses, Lynn Bonitz and Susan Galvin, from Schneider Children’s Hospital of North Shore LIJ Health Systems in New Hyde Park, New York. Lynn and Susan have over 22 years of experience in nursing (12 in the world of cystic fibrosis) and maintain a “positive attitude?.

  • Lynn and Susan are part of a phenomenal “TEAM? at the large CF Center at Schneider Children’s of North Shore LIJ Health Systems that has over 200 pediatric patients and over 80 adult CF patients.
  • A typical day in the life of a CF nurse: “we spend ½ of the day seeing patients in clinic followed by team meetings, phone triage, insurance issues, clinical studies, and involvement in emergency cases? states Lynn and Susan.
  • “What I like most about the job is working with the patients and their families? states Lynn
  • “The patients are always positive and very resilient? states Susan.
  • Challenges with infants: “the educational process for the family it is a long-term process? states Lynn
  • Challenges with adolescents: “having patients take control of their care and NOT abandoning care? states Susan.
  • Challenges with adults: “ Learning to maintain a balance in life?
  • Advice: Lynn and Susan both recommend that patients should have a case manager at their insurance company. “Case managers can make things go very smoothly?
  • Goal: “We strive to give the best care and help our patients in every way we can and not treat them like medical records?
Direct download: CFPodcast-06-18-06LIJNurses.mp3
Category:podcasts -- posted at: 12:55pm EST

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