54 Years Old and Living-Breathing Succeeding With Cystic Fibrosis
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Category:general -- posted at: 1:19pm EST

Episode #0048 Keith & Kyle Connolly Interview

TITLE: “The Connolly Twins – Transitioning into Adulthood with CF?

With the help of today’s therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling individuals with CF to pursue their dreams by entering college and the career world

Keith and Kyle Connolly, 21-year-old twin brothers and college students with CF talk about transitioning into college and adulthood. Keith and Kyle talk about growing up with CF and the lessons they have learned as they become more independent and responsible for their own health care. Keith and Kyle’s mother, Linda Hood, also shares her perspective on raising twin boys with CF and learning to “let go.?

Keith and Kyle discuss the importance of taking responsibility for their CF health care while maintaining their busy college schedules.

Highlights from the Podcast include:

  • Preparation and compliance are integral in making a successful transition into adulthood with CF.
  • The keys to staying healthy are compliance to medications, therapies, and exercise.
  • Time-management in college is crucial for maintaining health and quality of life.
  • Prior to moving away to college, begin to transition into self-ownership of health care.
  • It is important to maintain a relationship with your CF Center.
  • For parents - instill realistic hope within your child, and raise him or her to be independent; through age-appropriate responsibilities related to their health care.
  • When children leave the home, parents should have confidence in how their children have been taught to care for themselves.
Direct download: CF-02-21-07-Keith-Kyle-Connelly2.mp3
Category:podcasts -- posted at: 2:48pm EST

Episode #0047 Jerry Cahill's Exercise For Life Video (Windows Media Format)

Title: Action speaks louder than words… “EXERCISE FOR LIFE?

EXERCISE FOR LIFE was created by the Boomer Esiason Foundation to educate, raise awareness to the importance of exercise & compliance with CF, and to raise money for college scholarships for people with CF.

The EXERCISE FOR LIFE program serves as an inspirational message to CF patients, family members & the general public about the benefits of exercise and compliance to medical advice in the “here and now?

- “Exercise is the single most important thing in my life that keeps me healthy? states Jerry Cahill at 50 years old with cystic fibrosis.
- Jerry has been exercising all his life in spite of having CF - baseball, football, hockey, track & field (pole vault) and most importantly “jogging/running? on a daily basis.
- Doctors and CF centers “talk about it? but we need to get everyone with CF “doing it? Your lungs are muscles and need to be worked to keep them clear and strong.
- Besides being “compliant? to medication and therapy routines – exercise should be part of EVERYONE’S daily ritual.
- Jogging/walking is a UNIVERSAL activity that everyone can partake in without the need for an expensive gym membership or a pool. Jogging “outside? is key to oxygenating the lungs and keeping your airways clear.
- “The goal of exercise is to improve the quality of life and lifespan of individuals with CF through the power of daily physical activity

Direct download: ExerciseForLife2.wmv
Category:podcasts -- posted at: 3:05pm EST

Episode #0047 Exercise For Life Video (iPod M4V Format)

Title: Action speaks louder than words… “EXERCISE FOR LIFE?

EXERCISE FOR LIFE was created by the Boomer Esiason Foundation to educate, raise awareness to the importance of exercise & compliance with CF, and to raise money for college scholarships for people with CF.

The EXERCISE FOR LIFE program serves as an inspirational message to CF patients, family members & the general public about the benefits of exercise and compliance to medical advice in the “here and now?

- “Exercise is the single most important thing in my life that keeps me healthy? states Jerry Cahill at 50 years old with cystic fibrosis.
- Jerry has been exercising all his life in spite of having CF - baseball, football, hockey, track & field (pole vault) and most importantly “jogging/running? on a daily basis.
- Doctors and CF centers “talk about it? but we need to get everyone with CF “doing it? Your lungs are muscles and need to be worked to keep them clear and strong.
- Besides being “compliant? to medication and therapy routines – exercise should be part of EVERYONE’S daily ritual.
- Jogging/walking is a UNIVERSAL activity that everyone can partake in without the need for an expensive gym membership or a pool. Jogging “outside? is key to oxygenating the lungs and keeping your airways clear.
- “The goal of exercise is to improve the quality of life and lifespan of individuals with CF through the power of daily physical activity

Direct download: exerciseforlife.m4v
Category:podcasts -- posted at: 1:19pm EST

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