54 Years Old and Living-Breathing Succeeding With Cystic Fibrosis

Michael Bramhall

Michael is 24 years old with CF and 5 months post double lung transplant. Michael is from Nebraska, and loves fishing, hunting, exercising, and EMS. Michael also loves the outdoors and helping people. He was diagnosed at 4 months old and has a younger sister who is 20 years old, without CF.

  • Michael never let’s his CF stop him from doing the things he enjoys
  • In 2001 Mike began to understand the severity to his CF, due to a collapsed lung.
  • Michael believes that with a life threatening disease “feel lonely at times” is typical, so you need an outlet like exercise to feel better.
  • Michael states“Post transplant, is the best I have felt. Ever… I can finally breathe and have a great outlook on life” and he is extremely thankful to the donor.
  • Michael believes “if he keeps working hard and exercising he can keep his new lungs healthy and have a great quality of life” Life with a life threatening disease is “difficult”
  • Michael is happy to wake up every morning and enjoy life and thankful to his donor and family everyday

This educational podcast was made possible through an unrestricted educational grant from Allergan to the Boomer Esiason Foundation.

Direct download: Michael_Bramhall_FINAL.mp3
Category:general -- posted at: 9:35am EST

Adriane De Moerloose

 

Adriane is married with 3 children, and currently resides in North Carolina. She and her husband are the happy parents of 3 children. Alexis 7, Andrew 4.5, with CF, and Olivia who passed away 6 years ago from a rare heart disease. She currently enjoys running, biking, and hiking with her family. She also enjoys writing, listening to music and working out at the gym. She believes it is important to have inner strength and always be positive.

 

  • Adriane and her husband, Peter, believed that they needed to “buckle down” and get ready for another battle when they found out their son, Andrew, was diagnosed with CF.
  • She relied a lot on close friends and family. They also reached out to other parents who have children with CF.
  • She focused on one thought: “How can I raise my child while he will be dealing with a chronic illness everyday”
  • Andrew started to question his CF when he was 2.5-3 years old.
  • Andrew’s treatments are “Non-Negotiable”
  • He has begun teaching his peers about his CF and his treatments. He is a 3 year old CF Advocate

 

To learn more about Adriane and the ways she manages her mental well being, please listen to her podcast. 

  

This educational podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

Direct download: A_De_Moerloose_FINAL.mp3
Category:general -- posted at: 12:18pm EST

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