54 Years Old and Living-Breathing Succeeding With Cystic Fibrosis
Give the Gift of Life New Page 2

Title: Give the Gift of Life…

A Plea to Encourage Organ Donors - Charlie Stockley, Priority Recipient on National Organ Donor List, in Immediate Need of Lung Donor and Transplant

With most people focusing on getting through the holiday season, Charlie Stockley, 38, is fighting to get through another day waiting for a new set of lungs. Charlie is on life support and in immediate need of a lung transplant at Stanford Medical Center in Palo Alto. Charlie is up against his toughest battle with cystic fibrosis (CF). Although he is a priority lung transplant recipient on national organ donor watch lists, his condition remains tenuous as symptoms from CF complicate his recovery and threaten his life. Charlie has been on a life preserving ventilator since Tues, Dec 12, 2006, and a lung match has still not yet become available.

  • Charlie has been a tough fighter of this progressive, life-threatening lung disease, and has a lot to live for.

  • He met the love of his life 18 months ago, Margie Roper, and they are getting married on March 10, 2007. Charlie can’t wait to make a new home with Margie, and her two children, Michael and Amber who he loves very much.

  • Charlie grew up in Livermore, CA and has resided in San Francisco for over 10 years.

  • He works as an audio designer at Electronic Arts and has been a professional drummer for numerous bands, including Mojo Deluxe and Mad Dog Toor.

  • Please visit www.CharlieStockley.com

  • For more information and updates: info@charliestockley.com

December is the month of giving. We encourage everyone to make sure they are registered to show it’s important to them that others are given the opportunity to live a full and productive life. Charlie’s friends and family would greatly appreciate you getting the word out in anyway you can, as soon as you can.

Here are a few things to do:
1.  Take 3 minutes to sign up online to be a donor (by state). In California go to www.donatelifecalifornia.org. Other states, go to: www.donatelife.net
2.  When you sign up online, notify friends and family via email
3.  Tell your family members that you have decided to become a donor so they will understand your decision and support it.
4.  Say yes to donation on your driver’s license
5.  If tragedy should strike someone you know, please think of Charlie, and hundreds of people like him waiting for an organ, and encourage them to give the gift of life.

Passing of Charlie Stockley
From www.charliestockley.com
Charlie Stockley passed away on the night of December 24th, 2006. We fervently believe that Charlie's courageous battle with Cystic Fibrosis has inspired countless people to register as the organ donors that someday might save the lives of others in his situation. Although Charlie didn't receive the lungs he so desperately needed, we know he would be happy if only one person was helped by his struggle. Charlie's family wishes to express their most sincere gratitude for the love, prayers and support that sustained them during their difficult ordeal and demonstrated how many lives were touched by this remarkable man. Please honor Charlie's memory either by registering as an organ donor or making a contribution to any chapter of the Cystic Fibrosis Foundation.

Thanks to all who attended Charlie's Memorial Service & Life Celebration in Livermore on Saturday, January 6th, 2007. What a sincerely beautiful & glorious gathering! Thank you for the memories & memorabilia, all the music, the laughter & tears, your warm hearts & loving arms. A true testament to the power of one. You are invited to view photos from the celebration here.

Category:general -- posted at: 7:58pm EDT

Bonus Episode #0045: Sean Hunter Presents The Night Before Christmas
holiday ribbon
To everyone who loves football, Christmas and children.
A special podcast presentation of the classic Christmas story
The Night Before Christmas
has been added to the Boomer Esiason web site.


Jerry Cahill's Cystic Fibrosis Podcast
What we do want you to know is that it is OK to download this pod cast to your computer and to CDs without any cost or violation.  In fact, we encourage you to do so.  
Christmas is a special time, and the hope is that you can help others enjoy sharing Christmas memories and traditions with their family, neighbors and friends. 
So please,
be part of the Christmas spirit, enjoy the special recording, 
and pass the world along.
                                                        Always the best,
                                                                          Sean Hunter
Direct download: Wholeshebang02.mp3
Category:general -- posted at: 3:27pm EDT

Episode #0044 Cystic Fibrosis.com Celebrates 10 year Anniversary. Title:  Cystic Fibrosis.com Celebrates 10 year Anniversary.

Jeanne Barnett, former computer math teacher and now President of cysticfibrosis.com, talks about her site and how "it is a support community for those dealing with cystic fibrosis" Launched in 1996 with a friend who had CF, the site was started as an experiment but evolved into a major resource for the CF Community that gives people the opportunity to discuss CF with others.

CysticFibrosis.com is a public website and you do not have to sign up.
The site has over 117,372 messages as well as 11,112 threads and 3,396 users
1.   Jeanne reads every message and the site has over 1,000 visitors per day
2.   Cystic Fibrosis.com (www.cysticfibrosis.com) is a "place to share and celebrate life!" states Jeanne Barnett.
3.   The website is global and includes: forums, blogs, faq's, library, kids, CF Center info, photo galleries, recipes, and a section for newly diagnosed.
4.   The forums include topics on adults, families, new diagnosed, nutrition/exercise, transplants, and teenagers/young people.
5.   Jeanne is passionate about her site and states; "The CF Community is ONE family and we are here to support and inspire each other"

Direct download: CF-12-1-06-JeanneBarnet.mp3
Category:podcasts -- posted at: 4:39pm EDT

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