CF Podcast 148: Never Giving Up with CF

Today, we meet Chris Peacock, a 26 year old native of Durham, UK who loves sports, poker, and spending time with his girlfriend and friends. 

- Chris suffered a collapsed lung in 2011. 

- He stepped out of his comfort zone and started dedicating time to exercise and now walks/runs 2 miles every day.

- Because of his health issues, he is on home oxygen. But after starting his exercise regime, he only uses it at night and hopes that one day, with continued fitness, he will not need it at all. 

- Chris says that his friends generally don't treat him any differently, but don't fully grasp how serious his disease is because he never lets it slow him down. 

This CF podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

In the first episode of the Own Your Feeding Tube video podcast series, this “How-To” video will show how I am able to use my feeding tube in different situations. I cover two different types of “feeds,” bolus feeds and nocturnal pump feeds. Bolus feeds are quick and easy and can get me as much as 750 calories in just a few minutes. My nocturnal feeds typically run for about 7 hours and give me anywhere from 1500-2500 calories depending on how much formula I use.

I also discuss how the feeding tube system is undergoing a change to the ENfit connector system. The current ENfit transitional set has been introduced and has created many questions for tube feeders. In 2016, feeding tubes and their accompanying pieces will complete the total transition to the ENfit connector system, which is designed to improve patient safety. Hopefully this video can help answer some of those questions.

This video podcast/vodcast was made possible through an unrestricted educational grant from Nestle Health Science.

Jonny Simpson

Managing a Career with Cystic Fibrosis

Today, you will meet Jonny Simpson, who is living, breathing, and succeeding with cystic fibrosis. 

- 28 years old

- From Penrith, Cumbria, UK

- His hobbies include bodybuilding, literature, and music.

- He is one of four boys. 

- He works in sports marketing and also personal training. 

This podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

Meet Gary Reay - a 26 year old who grew up in Ireland with cystic fibrosis. 

- He plays soccer and boxes - generally trying to get to the gym at least 4 days a week with his friends - and also loves music and DJing. 

- After 19 years without an extended stay at the doctor's, Gary fell ill and was hospitalized for 6 weeks. 

- During that time, he lost a great deal of weight - leading him to the decision to get a feeding tube. 

- He uses his feeding tube every night and has seen a major change in his ability to retain weight and has much higher energy levels. 

This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.