This âLIVING. BREATHING. SUCCEEDING.â Podcast/Vodcast series is the 9th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

• Andrea was diagnosed with CF at 9 months, grew up in NYC, and studied art at SUNY Purchase
• âExercise is key going into a transplant so I used to swim in the pool using oxygen as my mother walked along the side of the pool holding the oxygen tankâ states Andrea
• Andrea was transplanted at New York Presbyterian in April 25th 2000 and was amazed at what if felt like to take a breath without coughing â âit is beyond comprehension, I never felt this wellâ.
• âGoing into transplant it is extremely important to have a support team â my mom is amazing!â states Andrea
• âLife goes on post transplant and I still have CF but my quality of life is betterâ
• Andrea competes in the Transplant Games (International Competition for people that have had a transplant) in tennis, biking, running, and swimming.
• Andreaâs advice to others facing a transplant include; investigate good transplant centers, talk to others that had a transplant, exercise, go to support groups, and have a strong support group of family and friends.
• â I appreciate being alive â itâs a giftââ states Andrea.

This âLIVING. BREATHING. SUCCEEDING.â Podcast/Vodcast series is the 5th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
 

• Andrea was diagnosed with CF at 9 months, grew up in NYC, and studied art at SUNY Purchase
• âExercise is key going into a transplant so I used to swim in the pool using oxygen as my mother walked along the side of the pool holding the oxygen tankâ states Andrea
• Andrea was transplanted at New York Presbyterian in April 25th 2000 and was amazed at what if felt like to take a breath without coughing â âit is beyond comprehension, I never felt this wellâ.
• âGoing into transplant it is extremely important to have a support team â my mom is amazing!â states Andrea
• âLife goes on post transplant and I still have CF but my quality of life is betterâ
• Andrea competes in the Transplant Games (International Competition for people that have had a transplant) in tennis, biking, running, and swimming.
• Andreaâs advice to others facing a transplant include; investigate good transplant centers, talk to others that had a transplant, exercise, go to support groups, and have a strong support group of family and friends.
• â I appreciate being alive â itâs a giftââ states Andrea.

This âLIVING. BREATHING. SUCCEEDING.â Podcast/Vodcast series is the 5th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
 

• Beth talks about knowing your legal rights and advocating for yourself.
• Beth discusses who qualifies for Social Security benefits, Medicare, and Medicaid.
• Learn pointers on how to obtain health insurance for children and adults with CF and how to deal with increasing drug co-pays.
• Beth discusses SSI, SSDI, Adult CF programs, COBRA, pre-existing clauses, Family Medical Leave Act, and YOUR medical records.
• â Be compliant â take care of yourself first and foremostâ is Bethâs main advice.
• âBig is Better when it comes to health insuranceâ states Beth.
  
  This âLIVING. BREATHING. SUCCEEDING.â Podcast/Vodcast series is the 4th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Jenny Davison, 39 years old with cystic fibrosis (CF), happily married, the proud mother of her 10 year-old daughter Dara and LIVING BREATHING SUCCEEDING on a daily basisâ
A little over a decade ago marriage and starting a family seemed to be an unthinkable dream for adults with CF. Through advancements in treatment of the disease and being compliant the dream became a reality for Jenny and her husband Tim.

• Jenny Davison grew up in Long Island and is one of 9 children.
• âFamily is Extremely important to meâ? states Jenny.
• Deciding to have a family when you have CF can be risky business butâ âStarting a family while you are healthy and always being compliant is keyâ?
• âIt is challenging for a woman with CF to have a child and you and your husband should know the risks but most importantly, take care of yourself firstâ? states Jenny.
• Jenny maintained her career as a nurse for seven months of her pregnancy and believes in the importance of a strong support system.
• Jenny states: âAlthough I have cystic fibrosis, Tim and I never regret having a childâ Dara has added so much to our livesâ?
• Jennyâs advice: âHaving CF does not mean you stop your life â you just keep living and have a career, think about getting married and starting a familyâ you do what everyone else does â I just have to work a little harder at it with CFâ?
• âEverybody has something and cystic fibrosis is what I haveââ?
  
  This âLIVING. BREATHING. SUCCEEDING.â? Podcast/Vodcast series is the 3rd of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Title: Cystic Fibrosis and Starting a Family

Jenny Davison, 39 years old with cystic fibrosis (CF), happily married, the proud mother of her 10 year-old daughter Dara and LIVING BREATHING SUCCEEDING on a daily basisâ
A little over a decade ago marriage and starting a family seemed to be an unthinkable dream for adults with CF. Through advancements in treatment of the disease and being compliant the dream became a reality for Jenny and her husband Tim.

• Jenny Davison grew up in Long Island and is one of 9 children.
• âFamily is Extremely important to meâ? states Jenny.
• Deciding to have a family when you have CF can be risky business butâ âStarting a family while you are healthy and always being compliant is keyâ?
• âIt is challenging for a woman with CF to have a child and you and your husband should know the risks but most importantly, take care of yourself firstâ? states Jenny.
• Jenny maintained her career as a nurse for seven months of her pregnancy and believes in the importance of a strong support system.
• Jenny states: âAlthough I have cystic fibrosis, Tim and I never regret having a childâ Dara has added so much to our livesâ?
• Jennyâs advice: âHaving CF does not mean you stop your life â you just keep living and have a career, think about getting married and starting a familyâ you do what everyone else does â I just have to work a little harder at it with CFâ?
• âEverybody has something and cystic fibrosis is what I haveââ?
  
  This âLIVING. BREATHING. SUCCEEDING.â? Podcast/Vodcast series is the 3rd of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
   

• Tiffany is a relationship driven person and believes telling about your CF is good, but that âless is moreâ? at the beginning of a romantic relationship.
• âCF adds more layers to relationships but I am worthy of it!â? says Tiffany.
• Tiffany has learned to âstop making my disease my identityâ? and to start communicating, enjoying, and having fun in a relationship â âWe are a teamââ?
• Relationships involve a lot of work and vulnerability â make sure you do your homeworkâ âRemember, like all relationships people may not accept each other due to certain likes/dislikes and that includes CFâ? states Tiffany.
• âDonât search for your worth in someone elseâs armsââ? says Tiffany.
• Tiffanyâs advice: â CF should be a motivator to get in a relationship. Relationships enhance your life! I have no regrets!â?
•  www.sickgirlspeaks.com
  
  * This âLIVING. BREATHING. SUCCEEDING.â? Podcast/ Vodcast series is the 2nd of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

• Jerry believes exercise and sports have made a major impact on improving his health and quality of life physically and mentally.
• Exercise outdoors to help keep your lungs clear.
• âSimple exercises like walking, jogging, stretching, push-ups, quick knee drills, and lunges help move the secretions and clear out the lungsâ? states Jerry
• Time management is key to CF and maintaining your daily therapy routine so you can continue socializing and enjoying the great opportunities and people in life.
• Jerry states; âDo not let CF stop youâ just get out there and live life to the fullest!â?
  
  * This âLIVING. BREATHING. SUCCEEDING.â? Podcast/Vodcast series is the 1st of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
   

• Jerry believes exercise and sports have made a major impact on improving his health and quality of life physically and mentally.
• Exercise outdoors to help keep your lungs clear.
• âSimple exercises like walking, jogging, stretching, push-ups, quick knee drills, and lunges help move the secretions and clear out the lungsâ? states Jerry
• Time management is key to CF and maintaining your daily therapy routine so you can continue socializing and enjoying the great opportunities and people in life.
• Jerry states; âDo not let CF stop youâ just get out there and live life to the fullest!â?
  
  * This âLIVING. BREATHING. SUCCEEDING.â? Podcast/Vodcast series is the 1st of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
   

• Jerry believes exercise and sports have made a major impact on improving his health and quality of life physically and mentally.
• Exercise outdoors to help keep your lungs clear.
• âSimple exercises like walking, jogging, stretching, push-ups, quick knee drills, and lunges help move the secretions and clear out the lungsâ? states Jerry
• Time management is key to CF and maintaining your daily therapy routine so you can continue socializing and enjoying the great opportunities and people in life.
• Jerry states; âDo not let CF stop youâ just get out there and live life to the fullest!â?
  
  * This âLIVING. BREATHING. SUCCEEDING.â? Podcast/Vodcast series is the 1st of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
   

• CFI is a 501(c) (3) Not for Profit organization based in Glenview, Chicago
• Dr. Boas states: âCFI offers services/educational programs for people with CF and their families.â?
• CFI develops strategic partnerships with local and national businesses for support.
• CFI offers clinical assistance and supports research investigations
• âThe Winter Education Retreat being held on February 16th 2008 is our biggest event and is being held in Glenview, Illinois (just outside of Chicago)â? states Dr. Boas.
• Winter Education Retreat focuses on practical issues for people with CF with the goal of giving people with CF at least one more tool that they did not have prior to the event.
• Dr. Boas is a major advocate of exercise and believes exercise is key or âjust getting people to moveââ?
• More info available at: www.cysticfibrosisinstitute.org or call 847-998-3434
]]> podcasts Fri, 18 Jan 2008 00:30:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=297755# podcast@esiason.org 00:43:50 cf, "cystic fibrosis", "jerry cahill", cfi, steven boas" Jerry Cahill Dr. Steven Boas Interview Clean http://cfpodcast.libsyn.com/index.php?post_id=289819# Linda Hood, Mother of Twin Boys with CF, Talks about Transitioningâ


Linda Hood from Cincinnati, Ohio talks about growing up with twin boys with CF â Keith and Kyle â and transitioning to an adult CF center. Lindaâs boys were born 4 weeks early and found out they had cystic fibrosis at 6 months of age.
• âFinding out my twin boys had cystic fibrosis was the most devastating thing in my lifeââ? states Linda
• Linda states; âthe doctors told a horrifying story and said my boys would not live to 18 years of ageâ?
• Linda and her family were proactive and started fundraising for a cure.
• Being a caregiver is scary due to concerns/fear of germs at school.
• Linda discusses making the transition from pediatric to adult CF center and the resources available to adults.
• Linda gets her support from her husband - âMy husband is my strength and gets me through the tough timesââ?
• âStay hopefulâ do what the doctors tell you to doâ do not take shortcuts,â? states Linda.
• Lindaâs advice: âLet your son or daughter be boys or girls and ENJOY LIFE!â?
• Keith and Kyle are in college today and LIVING BREATHING SUCCEEDING.
]]> podcasts Fri, 21 Dec 2007 21:31:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=289819# podcast@esiason.org 00:29:30 cf "cystic fibrosis" "Jerry Cahill" Jerry Cahill Linda Hood Interview Clean http://cfpodcast.libsyn.com/index.php?post_id=275329#
Courtney Ward Runs NYC Marathon for Team Boomer in 4 Hours 56 Minutes
]]> general Tue, 6 Nov 2007 20:07:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=275329# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=265928# Justin Carlson, Transitioning from High School to College â The Next Step to Success.

With the help of todayâs therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world.

âJustin Carlson, Transitioning from High School to College â The Next Step to Success,â? features Justin Carlson, an 18-year-old young man with CF. Justin talks about becoming independent and dealing with doctorâs appointments, CF therapies, going away to college vs. commuting, and the importance of compliancy on a daily basis. Justin believes in the importance of the âdoctor/patient relationshipâ? and âtaking control of your CF.â?

Key messages in the Podcast include:
• Taking control of your CF and not letting it catch up on you, even when you donât feel sick, is crucial for a good quality of life.
• Developing a strong relationship and communicating with your doctor and health care team, at an early age enhances your independence.
• Time-management and âpracticed independence and confidenceâ? help prepare individuals with CF for college and the real world.
• The keys to staying healthy are compliance to medications, therapies, exercise, and good nutrition.
• Parents should give their child with CF âremindersâ? regarding therapy, and instill independence in them at an early age.
• Parents should encourage their child to spend separate one-on-one âqualityâ? time with their doctor.
  
  * This Podcast is made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.
]]> podcasts Fri, 12 Oct 2007 19:47:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=265928# podcast@esiason.org 00:32:00 cf, cystic fobrosis, jerry cahill, esiason, justin carlson Jerry Cahill Justin Carlson Interview Clean http://cfpodcast.libsyn.com/index.php?post_id=260120# Scott Johnson is 35 years old with cystic fibrosis and LIVING, BREATHING, SUCCEEDING as he celebrated 6 years post double lung transplant on September 15th.  âDreams do come true,â? states Scott, as he gets ready for the Hawaiian Ironman Championships on October 13th 2007 in Kona, Hawaii. This is the most prestigious race in triathlon and the pinnacle of most peopleâs career. The Hawaii Ironman is the equivalent of the Tour de France, the Super Bowl, the World Series, and Wimbledon. Scott, competing for Team Boomer, has accepted this challenge to try and inspire people with CF to make exercise a part of their normal routine.
• Scott grew up in Jacksonville, North Carolina and was diagnosed with CF at 2 months.
• Scott received a double lung transplant on September 15th 2001.
• âExercise and a Positive Attitudeâ? helped Scott make it through the surgery.
• Scott states: âMy quality of life with my new lungs is better than living with CFâ?.
• On Motherâs Day in May 2003, Scott crossed the finish line of his first triathlonâ a gift for himself and his mother Marilyn.
• Scott has competed in over 25 triathlons of various distances and is now ready for the most elite triathlon, the Hawaii Ironman (swim 2.4 miles, bike 112 miles, and run 26.2 miles)
• Scottâs family and fiancÃ, Leanne, will be cheering him on in Hawaii and Scott will be getting married 3 days after the Ironman competition.
• Prior to each race Scott writes his transplant date on his forearm to remind himself of where he came from and his ânew beginningâ?.
• By competing for Team Boomer, Scott is helping to raise money for the Exercise for Life scholarship for people with CF. Join Scott and the cause: www.firstgiving.com/cfironman
• Check out Scottâs photoâs and video at: www.myspace.com/slowesttriathlete
• âDo Not Be Afraid of Deathâ Be Afraid of the Half Lived Lifeâ?
• Scottâs words of encouragement for others with CF or facing a transplant: âMaintain a positive outlook, donât give up, and keep exercising â miracles do happenââ? 
  
   
]]> podcasts Wed, 26 Sep 2007 19:51:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=260120# podcast@esiason.org 00:52:00 CF, Jerry Cahill Hawaii Ironman Clean http://cfpodcast.libsyn.com/index.php?post_id=250769# Title: Abby Tranel Wins 2007 Exercise for Life Scholarship


Abby Tranel from Hampton, Nebraska wins $10,000 scholar-athlete award for people with CF. Abby ran the 1.5 mile run in 10 minutes 19 seconds at Nebraska Wesleyan Universityâs track in Lincoln, Nebraska. Abby is a graduate of Hampton High School in Hampton, NE and graduated with a 3.5 G.P.A. and will be attending Nebraska Wesleyan University in the fall.
• Abby has always been involved in sports including volleyball, basketball, and track. School activities include the Student Council, Cheerleading, Speech, Drama, and President of the National Honor Society.
• Abby was diagnosed with CF at birth and also has an older sister with cystic fibrosis that competed nationally in track & field for University of Nebraska.
• âExercise and therapies for CF have very much become an integral part of my life and daily routine.â? states Abby.
• âAfter a few months of steady running, my lung function tests improved dramatically. It was not just the test results that kept me going with runningâ I just simply felt better, and most importantly felt that I was now in control of my CF, it was no longer controlling me!â? Abby states confidently.
• Abby lives a normal life and does not make a big deal about CF.
• âMy mom has taught me and my sister to be very independent at an early age and I thank her for thatââ?
• Regarding collegeâ âI look forward to meeting new people and am beginning to realize all the opportunities that college and our world has to offer.â?
• Besides being compliant to her medication and therapy, Abby has learned the value of exercise, keeping a routine, and following through for positive results.
• âI have realized that if you want to be big you have to dream bigâ and that is just what I am doing despite having CF!â? states Abby.
   
]]> podcasts Thu, 30 Aug 2007 19:39:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=250769# podcast@esiason.org 00:22:53 cahill, esiason, tranel, cf, cystic fibrosis, bef Jerry Cahill Abby Tranel Interview Clean http://cfpodcast.libsyn.com/index.php?post_id=248831# Title: Patrick Robinson wins 2007 Exercise for Life Scholarship


Patrick Robinson from Sandown, NH wins $10,000 scholar-athlete award for people with CF. Mr. Robinson ran the 1.5 mile run in 10 minutes 10 seconds at his former high school Timberlane Regional H.S. in Plaistow, NH as his mom, dad, and younger brothers Andrew and Christopher cheered him on. Patrick recently graduated with a 3.9 G.P.A. and will be attending Boston University in the fall.
• Patrick is very involved in sports including skiing, hiking (Patrick is an Eagle Scout), track, and Ultimate Frisbee and attributes exercise to playing a major part in keeping his lungs clear.
• âPlaying the trumpet in marching band also was a great form of airway clearanceâ? states Patrick.
• Patrick was diagnosed with CF at 3 months of age.
• Great Strides Walk-a-Thon team âPatrickâs Patrollersâ? walks every year to raise money for CFF and a cure.
• Regarding collegeâ âI look forward to meeting new people and being more independentâ?.
• Besides being compliant to his medication and therapy, Patrick goes above and beyond this daily ritual by running 2 miles everyday.
• âI believe in embracing the disease and not running from itâ? states Patrick.
]]> podcasts Fri, 24 Aug 2007 21:07:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=248831# podcast@esiason.org 00:32:06 cf, cystic fibrosis, jery cahill, boomer esiason, patrick robinson Jerry Cahill Patrick Robinson Interview Clean http://cfpodcast.libsyn.com/index.php?post_id=238166# Title: Kristin McFall, Time Management and Staying Compliant in Adulthood

With the help of todayâs therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world.

âKristin McFall, Time Management and Staying Compliant in Adulthood,â? features Kristin McFall, a 36-year-old career woman with CF. Kristin talks about succeeding in life, her career, traveling, and winning the battle with CF on a daily basis through therapy compliance. Kristin believes in the importance of âunderstanding your disease and partnering up with your health care team.â? The podcast is now available for downloading on www.jerrycahill.com beginning on May 4th, 2007.

Kristin discusses the importance of being compliant and proactive as an adult with CF while maintaining a career and busy social life.

Highlights from the Podcast include:
• Taking care of your health and being compliant with medical therapies are an integral part to being successful in your career as an adult with CF.
• The key ingredients to staying healthy and having a better quality of life are: compliance to medications & therapies, exercise, nutrition, hydration, and sleep.
• CF is a life-long illness therefore you must learn to be an expert with yourself and revel in the day!
• t is important to maintain a partnership with your CF Center and stand up for yourself.
• CF adults must learn to âmulti-taskâ? and âstay clearâ? by being disciplined with your health care.
• Kristinâs âFabulous 4â? tips for being compliant include: bronchodilators, Pulmozyme, airway clearance, and inhaled antibiotics.
]]> podcasts Mon, 23 Jul 2007 23:19:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=238166# 00:50:26 kristen mcfall, cf, cystic fibrosis, jerry cahill, boomer esiason podcast@esiason.org Kristen McFall Interview Clean http://cfpodcast.libsyn.com/index.php?post_id=231548#
âMaking Fun Contagiousâ?â

Jo Anne McKinney and Grant Prather make BIG FUN for many pediatric patients with the BIG FUN BOX. The mission statement: To share with pediatric patients and their familiesâ ways to use their imagination to give them comfort and fun in the midst of stressful situations. The BIG FUN BOX is filled with a stress toy, folding ruler, colored pencils, pencil sharpener, jigsaw puzzle, HeadGames, Findâems, imagination pad, thank you notes, plastic stencil, and playing cards.
• âThe BIG FUN BOX is filled with imagination and you can let it take you wherever you want to goââ? states Jo Anne
• Jo Anne has spent many hours in the hospital with her son Grant, due to his cystic fibrosis, and they learned to âmake their own funâ?
• The BIG FUN BOX is an activity box for children in the hospital with chronic illnesses (ages 7 to 12)
• The BIG FUN BOX was launched in October 2006 and has delivered over 3,100 boxes in 9 states to 31 hospitals. âOur goal is to raise $2.0 million and deliver 100,000 BIG FUN BOXESâ? states Jo Anne.
• âThe BFB is a great vehicle to rescue patients after being in the hospital for 5-6 days and you just find out you will be in longerâ?
• The BIG FUN BOX seeks corporate sponsors to bring BIG FUN to children with chronic diseases. Jo Anne needs to raise $27,000 before 1,000 boxes can go into production.
• The BIG FUN BOX is a 501 c (3) non-profit organization.
  
  For more info: www.thebigfunbox.org or call: 904-730-0956
]]> podcasts Mon, 2 Jul 2007 23:04:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=231548# 00:40:06 Jo Anne McKinney, Jerry Cahill, Big Fun Box, CF, cystic fibrosis podcast@esiason.org Making Fun Contagious Clean http://cfpodcast.libsyn.com/index.php?post_id=227354# Title: Adult Cystic Fibrosis Day


Baylor University Medical Center in Houston, Texas held a ground breaking event with the first ever Adult CF Day. This educational event featured Boomer Esiason and Dr. Marcia Katz speaking about how we are "living a medical miracle" with 40% of the CF population being adults and living longer with a better quality of life.
• Adults with CF are attending college, have careers, and having families.
• Adults with CF maintain a "positive mental attitude" and keep raising the bar.
• With the explosion of the adult CF population "transitioning" to an adult program is crucial.
• Adults with CF are living longer and maintaining a better quality of life.
• Adults are mentors for younger individuals with CF and their families.

   

]]> podcasts Wed, 20 Jun 2007 20:49:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=227354# podcast@esiason.org Clean http://cfpodcast.libsyn.com/index.php?post_id=227351# Title: Adult Cystic Fibrosis Day


Baylor University Medical Center in Houston, Texas held a ground breaking event with the first ever Adult CF Day. This educational event featured Boomer Esiason and Dr. Marcia Katz speaking about how we are âliving a medical miracleâ? with 40% of the CF population being adults and living longer with a better quality of life.
• Adults with CF are attending college, have careers, and having families.
• Adults with CF maintain a âpositive mental attitudeâ? and keep raising the bar.
• With the explosion of the adult CF population âtransitioningâ? to an adult program is crucial.
• Adults with CF are living longer and maintaining a better quality of life.
• Adults are mentors for younger individuals with CF and their families.

  ]]> podcasts Wed, 20 Jun 2007 20:28:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=227351# podcast@esiason.org 00:07:10 podcast@esiason.org CF Adult Family Day - WMF File Clean http://cfpodcast.libsyn.com/index.php?post_id=224729# Title: Kyle Connolly Talks about being Compliant, Exercise, and College Life.
  
  
  Kyle Connolly is a 21 year old college student that âstays clearâ? by doing aerosols and vest treatments 3 times per day and exercising on a daily basis to keep his lungs clear. Kyle works very hard to stay healthy so he can have a better quality of life and enjoy!

  • Kyle was diagnosed at 7 weeks due to âfailure to thriveâ?
  • Growing up with CF was non-eventful until high school when he started having more infections.
  • Kyle attends Xavier University in Cincinnati, Ohio and will be a senior next year.
  • âBeing involved in sports all my life has helped keep my lungs clear!â?
  • Kyle participated in football, baseball, soccer, wrestling, and cross country growing up and now is a varsity cheerleader at Xavier University.
  • Kyle also enjoys running and competes in the FLYING PIG MARATHON every May in Cincinnati, Ohio. Kyle is part of a team and runs the  marathon (13.1 miles)
  • âTime management is the biggest challenge I face daily living with CF but I just do it â I have no choice if I want to enjoy everything life has to offerâ? states Kyle.
  • Kyle is very excited about all the new drugs in the pipeline for people with CF.

   

  ]]> podcasts Tue, 12 Jun 2007 20:06:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=224729# 00:34:25 CF, cystic fibrosis, kyle connolly, jerry cahill, boomer esiason podcast@esiason.org Kyle Connolly Interview Clean http://cfpodcast.libsyn.com/index.php?post_id=212980# Bob Hansen, Chairman, CEO, and co-founder of Electromed, Inc in 1992, makers of Smart Vest, discusses the newest and most advanced airway clearance system SMARTVEST. The vest is designed for comfort and ease-of-use to support patient compliance as well as being efficient, portable, and cost effective.
  
  - Smart Vest â airway clearance system or High Frequency Chest Wall Oscillation (HFCWO) is the mechanical loosening, mobilization and release of excess mucous.
  - The Smart Vest is effective, convenient, and comfortable. Patented vest design (soft fabric & washable) delivers HFCWO with a calmer, gentler, and more relaxed treatment experience.
  - Generator is programmable to assure consistent treatments each day.
  - Vest size fits small toddlers to large adults.
  - Wheeled Smart Vest Trimeline Carrier travels easily and fits inside airplane as a carry-on.
  - Smart Vest offers lifetime warranty and upgrade policy.
  - âInnovation is an important part of our companyâ? states Bob Hansen
  - All field staff are Respiratory Therapists.
  - Smart Vest is an international company and offers a 24 hour toll free number.
  - âThe compact size of Smart Vest makes it a great for people with CF going away to collegeâ? states Bob Hansen
  - Smart Vest is based in New Prague, MN. For more info call: 800-462-1045.
  - Website: www.electromed-usa.com
  ]]> podcasts Wed, 9 May 2007 18:40:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=212980# 00:42:18 smart vest,, cahill, cf, cystic fibrosis, cf, bob hansen podcast@esiason.org Smart Vest - Bob Hansen Interview Clean http://cfpodcast.libsyn.com/index.php?post_id=209397# EXERCISE for LIFE SCHOLARHIP The Boomer Esiason Foundation has created a scholar-athlte award to assist cystic fibrosis senior high school athletes pursuing undergraduate degrees.

  - "Exercise is the single most important thing in my life that keeps me healthy... jogging is a universal activity that everyone can partake in without the need for an expensive gm or pool membership" states Jerry Cahill who is a 50 year-old with CF. Jerry has been exercising all his life in spite of having CF.
  - The goal of the scholar athlete award is to raise awareness, improve the quality of life and lifespan of individuals with CF through the power of daily physical exercise.
  - The scholarship will be awarded annually based on demonstrated financial need, academic accomplishment and athletic ability in the area of running. All finalist will be timed in a 1.5 mile jog.
  - Award: 1 female winner and 1 male winner each receiving $10,000. awarded to the college of their choice.
  - The student/athlete should be jogging on a regular basis and training for the 1.5 mile run. All candidates will be judged on time.
  - Scholarship launches May 1st 2007
  - Deadline July 29th 2007
  - For more information and applications go to: www.cfscholarships.com

  ]]> podcasts Mon, 30 Apr 2007 16:39:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=209397# 00:03:40 podcast@esiason.org Exercise for Life Scholarship Clean exercise, scholarship http://cfpodcast.libsyn.com/index.php?post_id=202955# Laps for CF Foundation
  ...on the road to a cure...
  
  The Laps for CF Foundation is an organization based out of Birmingham, Alabama that fights Cystic Fibrosis everyday.  Together with CF supporters across the United States, the laps for CF Foundation raises money and awareness for Cystic Fibrosis.
  • The money the Foundation raises is awarded to 3 main organizations: The Cystic Fibrosis Foundation, CF Hope for Alabama, and CF Care Clinics.
  • Emily Schreiber was diagnosed with cystic fibrosis in the winter of 2003. After diagnosis and reading a  book called Karen's Ride - where a young girl, Karen, raised money for her local hospital... Emily decided  to do the same for Cystic Fibrosis.
  • The first year Emily swam at Wald Park in Vestavia, Alabama and raised over $60,000.
  • In 2005 Emily swam with the Auburn University swim team and raised over$220,000.
  • Emily plans on teaming up with the Boomer Esiason Foundation to combat cystic fibrosis by launching Swim-a-Thons with 15+ Universities across the nation.
  • For more information: www.lapsforcf.org
  • E-Mail Emily at: emily@lapsforcf.org
  ]]> general Thu, 12 Apr 2007 18:47:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=202955# podcast@esiason.org laps for cf, cahill, boomer esiason Jerry Cahill No http://cfpodcast.libsyn.com/index.php?post_id=200802# Title: Brianâs Ride
  
  Brian McCandless is like any  average nineteen year old university student except, like 30,000 Americans, he has cystic fibrosis. On May 16th 2007 Brian will cycle from Pittsburgh, PA to Tallahassee, Florida and backâ to raise awareness for cystic Fibrosis. Brian will bike over 2,000 miles (25 day trip) averaging 100 miles per day.
  
  - Brian was diagnosed at 2 months of age due to âfailure to thriveâ? and is from West Sunbury, PA.
  
  - Brian is a freshman at Slippery Rock University and a member of the cycling club
  
  - âI believe biking is the best form of airway clearanceâ? states Brian.
  
  - According to Brian âPeople with CF are often told not to over exert themselves. I say EXERT ON! No one should ever be told they cannot do somethingâ?
  
  - Brian believes the most important factor in maintaining his health is âexercise and nutritionâ?
  
  - âMy goal for Brianâs Ride is to increase CF awareness, raise money for CF research, and most importantly, give hope to children who are diagnosed with CF.
  
  - To donate to Brian's Ride or for more information go to: www.briansride.org

   

  GOOD LUCK BRIAN!

  ]]> podcasts Fri, 6 Apr 2007 19:20:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=200802# podcast@esiason.org 00:27:12 CF, cystic fibrosis, boomer esiason, jerry cahill Jerry Cahill Brian's Ride Clean http://cfpodcast.libsyn.com/index.php?post_id=200149# Come Join the Fun!
  
  Date
  Saturday, Apr 7, 2007
  
  Time
  7:00 pm - 11:00 pm
  
  Location
  Canal Room
  285 W. Broadway
  New York, NY 10013 Date: April 7th
  Location: Canal Room
  New York, NY
  
  Price: $18 Online
  http://blubrryjam.eventbrite.com/
  
  $20 at the Door
  
  I hope to see you at the Canal Room
  
  ]]> podcasts Wed, 4 Apr 2007 20:56:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=200149# podcast@esiason.org 00:01:00 podcast@esiason.org Clean http://cfpodcast.libsyn.com/index.php?post_id=198186# Title: CF Great Strides NYC Walk â Raising Money for a Cure!

  Dawn and Stan Zolek are parents of 3 year old Stanley, who has CF and a 1 year old daughter who is a carrier of the gene. They are chairing the NYC Great Strides Walk in their neighborhood, Battery Park City.

  The event is âfeel good type of day!â? and raises money for research to help find a cure for cystic fibrosis.

  • âStanley is compliant to his daily routine and does his âwork outâ? (vest treatment) twice a dayâ? states his dad Stan.

  • Stanleyâs website: ilovestanleynyc.com

  • âCF Great Strides is a fun day with lots of family and community involvementâ? states Dawn Zolek.

  • CF Great Strides is a 6.2 mile walk and is the Cystic Fibrosis Foundationâs largest national fundraising event. The event has 100 sites nationally and raised over $32 million last year.

  • The metro New York area will be hosting 4 sites for the event:

    • Battery Park City, NYC on Saturday, May 19^th 9am

    • Rye Playland, Rye, NY on Sunday, May 20^th 9am

    • Clove Lakes Park, Staten Island, NY on Saturday, June 2^nd 9am

    • Bowdoin Park, Poughkeepsie, NY on Sunday, June 3^rd 9am

  • More information on CF Great Strides nationally is available at: www.cff.org/great_strides

  ]]> podcasts Fri, 30 Mar 2007 18:18:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=198186# podcast@esiason.org 00:24:08 Jerry Cahill Clean http://cfpodcast.libsyn.com/index.php?post_id=186441# My Podcast Alley feed! {pca-c360b5469328cb89aa7d70dfb79fc069}]]> general Mon, 26 Feb 2007 18:19:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=186441# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=184588# TITLE: âThe Connolly Twins â Transitioning into Adulthood with CFâ?
  
  With the help of todayâs therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling individuals with CF to pursue their dreams by entering college and the career world
  
  Keith and Kyle Connolly, 21-year-old twin brothers and college students with CF talk about transitioning into college and adulthood. Keith and Kyle talk about growing up with CF and the lessons they have learned as they become more independent and responsible for their own health care. Keith and Kyleâs mother, Linda Hood, also shares her perspective on raising twin boys with CF and learning to âlet go.â?
  
  Keith and Kyle discuss the importance of taking responsibility for their CF health care while maintaining their busy college schedules.
  
  Highlights from the Podcast include:
  • Preparation and compliance are integral in making a successful transition into adulthood with CF.
  • The keys to staying healthy are compliance to medications, therapies, and exercise.
  • Time-management in college is crucial for maintaining health and quality of life.
  • Prior to moving away to college, begin to transition into self-ownership of health care.
  • It is important to maintain a relationship with your CF Center.
  • For parents - instill realistic hope within your child, and raise him or her to be independent; through age-appropriate responsibilities related to their health care.
  • When children leave the home, parents should have confidence in how their children have been taught to care for themselves.
    ]]> podcasts Wed, 21 Feb 2007 19:48:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=184588# podcast@esiason.org 00:37:10 podcast@esiason.org The Connolly Twins â Transitioning into Adulthood with CF Clean http://cfpodcast.libsyn.com/index.php?post_id=179122# Title: Action speaks louder than wordsâ âEXERCISE FOR LIFEâ?
    
    EXERCISE FOR LIFE was created by the Boomer Esiason Foundation to educate, raise awareness to the importance of exercise & compliance with CF, and to raise money for college scholarships for people with CF.
    
    The EXERCISE FOR LIFE program serves as an inspirational message to CF patients, family members & the general public about the benefits of exercise and compliance to medical advice in the âhere and nowâ?
    
    - âExercise is the single most important thing in my life that keeps me healthyâ? states Jerry Cahill at 50 years old with cystic fibrosis.
    - Jerry has been exercising all his life in spite of having CF - baseball, football, hockey, track & field (pole vault) and most importantly âjogging/runningâ? on a daily basis.
    - Doctors and CF centers âtalk about itâ? but we need to get everyone with CF âdoing itâ? Your lungs are muscles and need to be worked to keep them clear and strong.
    - Besides being âcompliantâ? to medication and therapy routines â exercise should be part of EVERYONEâS daily ritual.
    - Jogging/walking is a UNIVERSAL activity that everyone can partake in without the need for an expensive gym membership or a pool. Jogging âoutsideâ? is key to oxygenating the lungs and keeping your airways clear.
    - âThe goal of exercise is to improve the quality of life and lifespan of individuals with CF through the power of daily physical activity
    ]]> podcasts Tue, 6 Feb 2007 20:05:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=179122# podcast@esiason.org 00:03:29 Jerry Cahill Windows Media Format Clean http://cfpodcast.libsyn.com/index.php?post_id=178711# Title: Action speaks louder than wordsâ âEXERCISE FOR LIFEâ?
    
    EXERCISE FOR LIFE was created by the Boomer Esiason Foundation to educate, raise awareness to the importance of exercise & compliance with CF, and to raise money for college scholarships for people with CF.
    
    The EXERCISE FOR LIFE program serves as an inspirational message to CF patients, family members & the general public about the benefits of exercise and compliance to medical advice in the âhere and nowâ?
    
    - âExercise is the single most important thing in my life that keeps me healthyâ? states Jerry Cahill at 50 years old with cystic fibrosis.
    - Jerry has been exercising all his life in spite of having CF - baseball, football, hockey, track & field (pole vault) and most importantly âjogging/runningâ? on a daily basis.
    - Doctors and CF centers âtalk about itâ? but we need to get everyone with CF âdoing itâ? Your lungs are muscles and need to be worked to keep them clear and strong.
    - Besides being âcompliantâ? to medication and therapy routines â exercise should be part of EVERYONEâS daily ritual.
    - Jogging/walking is a UNIVERSAL activity that everyone can partake in without the need for an expensive gym membership or a pool. Jogging âoutsideâ? is key to oxygenating the lungs and keeping your airways clear.
    - âThe goal of exercise is to improve the quality of life and lifespan of individuals with CF through the power of daily physical activity
    ]]> podcasts Mon, 5 Feb 2007 18:19:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=178711# podcast@esiason.org 00:03:28 Jerry Cahill Exercise For Life Video Clean http://cfpodcast.libsyn.com/index.php?post_id=172760# Beth Sufian Podcast Show notes

    Title: New Challenges in Obtaining & Maintaining Health Insurance

    Beth Sufian is an attorney and a 41 year-old with cystic fibrosis. She is the Director of the CF Legal Information Hotline, sponsored by CF Services Pharmacy, which has assisted over 7,000 people with CF. Beth serves on the CF Foundation Advisory Task Force on Adult Issues.

    • Beth talks about knowing your legal rights and advocating for yourself and children.

    • Beth discusses who qualifies for Social Security benefits, Medicare and Medicaid.

    • Learn pointers on how to obtain health insurance for children and adults with CF and how to deal with increasing drug co-pays.

    • CF Legal Information Hotline offers free and confidential information on legal rights of people with CF. Call: 1-800-622-0385 or Email: CFLegal@cfserv.com

    • Learn about the âgolden nuggetsâ? of HIPAA

    • âKeep good recordsâ? suggests Beth

    • COBRA Insurance - Consolidated Omnibus Budget Reconciliation Act.

    • Beth gives pointers on Transitioning to Adulthood.

    • Beth also talks about Government Programs:

      • SSI â Supplemental Security Income

      • SSDI â Social Security Disability Income

      • Medicaid

      • Medicare

    • Beth Sufianâs clients include many people with CF. She is based out of Houston, Texas and travels nationally.

    ]]> podcasts Sat, 20 Jan 2007 02:17:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=172760# podcast@esiason.org 00:39:54 Jerry Cahill Episode 0046: New Challenges in Obtaining & Maintaining Health Insurance Clean http://cfpodcast.libsyn.com/index.php?post_id=169126# Title: With Every Breath â stories about people living with cystic fibrosis.

    Katherine Russell is 16 years old with cystic fibrosis, from Buffalo, NY. Katherineâs book has a wide variety of writers from young, old, parents, patients, doctors, and friends. It demonstrates how the individual with CF as well as family and friends deal with CF.

    This book is very inspirational and educational for all involved in the world of cystic fibrosis.

    • Katherine is an outgoing young lady that swims on 2 teams, snowboarding, and loves socializing with her friends, music (cello) and writing.

    • Katherine attends high school and is a volunteer on the CF advisory panel at Childrenâs Hospital of Buffalo to help work towards better CF care.

    • âI want to travel to South Africa and Europe somedayâ? states Katherine.

    • In Katherineâs book With Every Breath, the stories range from recounts of having a child diagnosed with CF to being a patient receiving a transplant.

    • Some stories simply share advice and perspective, while others share stories of travel, success, understanding, and change.

    • For more information on the book contact Katherine Russell:
      www.lifewitheverybreath.com

    ]]> general Tue, 9 Jan 2007 18:22:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=169126# podcast@esiason.org CYSTIC FIBROSIS, Katherine Russell, Jerry Cahill, CF podcast@esiason.org With Every Breath Clean http://cfpodcast.libsyn.com/index.php?post_id=163231#

    Title: Give the Gift of Lifeâ
    
    A Plea to Encourage Organ Donors - Charlie Stockley, Priority Recipient on National Organ Donor List, in Immediate Need of Lung Donor and Transplant
    
    With most people focusing on getting through the holiday season, Charlie Stockley, 38, is fighting to get through another day waiting for a new set of lungs. Charlie is on life support and in immediate need of a lung transplant at Stanford Medical Center in Palo Alto. Charlie is up against his toughest battle with cystic fibrosis (CF). Although he is a priority lung transplant recipient on national organ donor watch lists, his condition remains tenuous as symptoms from CF complicate his recovery and threaten his life. Charlie has been on a life preserving ventilator since Tues, Dec 12, 2006, and a lung match has still not yet become available.

    • Charlie has been a tough fighter of this progressive, life-threatening lung disease, and has a lot to live for.

    • He met the love of his life 18 months ago, Margie Roper, and they are getting married on March 10, 2007. Charlie canât wait to make a new home with Margie, and her two children, Michael and Amber who he loves very much.

    • Charlie grew up in Livermore, CA and has resided in San Francisco for over 10 years.

    • He works as an audio designer at Electronic Arts and has been a professional drummer for numerous bands, including Mojo Deluxe and Mad Dog Toor.

    • Please visit www.CharlieStockley.com

    • For more information and updates: info@charliestockley.com

    
    December is the month of giving. We encourage everyone to make sure they are registered to show itâs important to them that others are given the opportunity to live a full and productive life. Charlieâs friends and family would greatly appreciate you getting the word out in anyway you can, as soon as you can.

    Here are a few things to do:
    1.  Take 3 minutes to sign up online to be a donor (by state). In California go to www.donatelifecalifornia.org. Other states, go to: www.donatelife.net
    2.  When you sign up online, notify friends and family via email
    3.  Tell your family members that you have decided to become a donor so they will understand your decision and support it.
    4.  Say yes to donation on your driverâs license
    5.  If tragedy should strike someone you know, please think of Charlie, and hundreds of people like him waiting for an organ, and encourage them to give the gift of life.
    
    Passing of Charlie Stockley
    From www.charliestockley.com
    Charlie Stockley passed away on the night of December 24th, 2006. We fervently believe that Charlie's courageous battle with Cystic Fibrosis has inspired countless people to register as the organ donors that someday might save the lives of others in his situation. Although Charlie didn't receive the lungs he so desperately needed, we know he would be happy if only one person was helped by his struggle. Charlie's family wishes to express their most sincere gratitude for the love, prayers and support that sustained them during their difficult ordeal and demonstrated how many lives were touched by this remarkable man. Please honor Charlie's memory either by registering as an organ donor or making a contribution to any chapter of the Cystic Fibrosis Foundation.
    
    Thanks to all who attended Charlie's Memorial Service & Life Celebration in Livermore on Saturday, January 6th, 2007. What a sincerely beautiful & glorious gathering! Thank you for the memories & memorabilia, all the music, the laughter & tears, your warm hearts & loving arms. A true testament to the power of one. You are invited to view photos from the celebration here.

    ]]> general Wed, 20 Dec 2006 00:58:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=163231# jcahill@esiason.org podcast@esiason.org Clean http://cfpodcast.libsyn.com/index.php?post_id=159695#
    To everyone who loves football, Christmas and children.

     

    A special podcast presentation of the classic Christmas story

    The Night Before Christmas

    has been added to the Boomer Esiason web site.
    
    www.esiason.org
    &
    
    Jerry Cahill's Cystic Fibrosis Podcast

     

    www.jerrycahill.com

     

    What we do want you to know is that it is OK to download this pod cast to your computer and to CDs without any cost or violation.  In fact, we encourage you to do so.  

    Christmas is a special time, and the hope is that you can help others enjoy sharing Christmas memories and traditions with their family, neighbors and friends. 

    So please,

    be part of the Christmas spirit, enjoy the special recording, 

    and pass the world along.

     

                                                            Always the best,

     

                                                                              Sean Hunter
    ]]> general Sun, 10 Dec 2006 20:27:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=159695# podcast@esiason.org 00:03:45 Shawn Hunter The Night Before Christmas Clean http://cfpodcast.libsyn.com/index.php?post_id=157158# Title:  Cystic Fibrosis.com Celebrates 10 year Anniversary.
    
    
    Jeanne Barnett, former computer math teacher and now President of cysticfibrosis.com, talks about her site and how "it is a support community for those dealing with cystic fibrosis" Launched in 1996 with a friend who had CF, the site was started as an experiment but evolved into a major resource for the CF Community that gives people the opportunity to discuss CF with others.
    
    CysticFibrosis.com is a public website and you do not have to sign up.
    The site has over 117,372 messages as well as 11,112 threads and 3,396 users
    1.   Jeanne reads every message and the site has over 1,000 visitors per day
    2.   Cystic Fibrosis.com (www.cysticfibrosis.com) is a "place to share and celebrate life!" states Jeanne Barnett.
    3.   The website is global and includes: forums, blogs, faq's, library, kids, CF Center info, photo galleries, recipes, and a section for newly diagnosed.
    4.   The forums include topics on adults, families, new diagnosed, nutrition/exercise, transplants, and teenagers/young people.
    5.   Jeanne is passionate about her site and states; "The CF Community is ONE family and we are here to support and inspire each other"
    www.cysticfibrosis.com
    
    HAPPY 10 YEAR ANNIVERSARY!!!!  KEEP UP THE GREAT WORK!!!! ]]> podcasts Fri, 1 Dec 2006 21:39:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=157158# podcast@esiason.org 00:16:14 cystic fibrosis, CF, Cahill, Barnet Jerry Cahill Clean http://cfpodcast.libsyn.com/index.php?post_id=154081# A big THANKS to Mr. Rob Safuto of the New York Minute Podcast

    for his coverage of the New York City Post-Marathon Party at Mr. Denney's Pub.  Rob has been a Quiet Giant of the Boomer Esiason Foundation for quite a while...and was instrumental in teaching me about podcasting in early 2005.

    
    

    This Podcast can also be heard on the New York Minute Podcast.  The following is Rob's show notes from his podcast.

    Check out all of Rob's Podcasts

    http://www.podcastnyc.net (New York City Podcast Network)
    http://www.newyorkminuteshow.com (Podcast Guide to New York City)
    http://www.getyourflow.com (Flow is music...liberated!)
    http://community.podcastnyc.net (Join the community!)

    This is as close as well get to a New York City Marathon special this year on the show. Not bad though. In association with my friend Jerry Cahill, host of the Cystic Fibrosis Podcast, I covered the Team Boomer post marathon fund raiser.

    The event was held at a very nice Irish Pub called Mr. Dennehy's. The pub is located at 63 Carmine St. near 7th Avenue South.

    And yes I did interview one actual runner in the marathon. I also talk with Jerry about Team Boomer and mix with some locals who talk about their experiences around town.

    This episode also includes a promo for an upcoming show by my pal Brother Love.

    ]]> podcasts Tue, 21 Nov 2006 23:30:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=154081# podcast@esiason.org Jerry Cahill Clean http://cfpodcast.libsyn.com/index.php?post_id=152678# Title: RUN SARAH RUN!!!
    
    Sarah Katopodis ran her 1st Marathon in NYC and ran it for Team Boomer â Fighting Cystic Fibrosis, and we are honored!! Sarah raised over $4,000 for the Foundationâs Exercise for Life Scholarship and was presented with a game ball for her unending passion and support for the CF community.
    
    1.   Sarah grew up in New Jersey and attended the University of Scranton and has a masters in marketing.
    
    2.   Sarah is blessed with a beautiful loving family and has a very supportive husband, Taso, as well as 3 phenomenal sons that keep her running marathons on a daily basis â Alex, Evan, and Steven. All were cheering Sarah on during the marathon.
    
    3.   âAs a child I used to run with my Grandfather at 6am during the summer at Long Beach Islandâ? states Sarah.
    
    4.   Sarah continued here passion for running with a running group while working in Charlotte, NC and ran 2 half marathons.
    
    5.   Sarahâs NYC Marathon application was declined a few times before finally being accepted for the 2006 NYC Marathon. âFrom that day forward â the training and commitment beganââ? states Sarah.
    
    6.   Sarah and her family launched www.cysticfibrois.com over 10 years ago â a informative/educational/supportive site for people with CF and their families and therefore was committed to running the NYC Marathon for a cause related to cystic fibrosis.
    
    7.   Sarah finished the marathon in 6 hours and 20 minutes and is a winner spiritually, physically, and as a committed person in the game of life â CONGRATâS!!!!
    
     8.   Check out Sarahâs award winning blog on her marathon experience at: http://blogs.cysticfibrosis.com/index.cfm?forumid=250
    
    Also check out cysticfibrosis.comâs website at: www.cysticfibrosis.com
    ]]> podcasts Fri, 17 Nov 2006 19:17:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=152678# podcast@esiason.org 00:34:53 Jerry Cahill Run Sarah, Run! Clean http://cfpodcast.libsyn.com/index.php?post_id=151391#
    1.   Joe Kelly runs his first marathon for Team Boomer â Fighting Cystic Fibrosis in under 4 hours
    
    2.   The Boomer Esiason Foundation presents Joe Kelly with an autographed football by Boomer Esiason for his great cause
    
    3.   Donal Dennehy accommodates the Boomer Esiason Foundation at his restaurant to help raise funds for people with CF
    
    4.   Donal is presented with a game ball for his commitment to the fight against cystic fibrosis
    
    5.   The event was a huge success raising over $5,000. for scholarships and a fun time was had by all.
    
    6.   Donal states âThis is the first of many fundraising events that Mr. Dennehyâs will partner up with the Boomer Esiason Foundation to raise money for a cure.
    
    For more information on Mr. Dennehyâs go to: www.mrdennehys.com]]> general Tue, 14 Nov 2006 01:50:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=151391# podcast@esiason.org Jerry Cahill No http://cfpodcast.libsyn.com/index.php?post_id=145233# MR. DENNEHYâS TO HOST TEAM BOOMER - FIGHTING CYSTIC FIBROSIS POST- NYC MARATHON BENEFIT
    
    
    - On Sunday, November 5 from 7:00 PM to 9:00 PM, Mr. Dennehyâs located at 63 Carmine Street @ Seventh Avenue in New York Cityâs West Village will host a post-marathon celebration to benefit Team Boomer- Fighting Cystic Fibrosis.
    
    - The event is open to the public and ticket price is $25, which includes a two-hour open bar. All proceeds from the evening will go directly to the Boomer Esiason Foundation (BEF) to support the Exercise for Life Scholarship for individuals with cystic fibrosis.
    
    - Joe Kelly, an employee at Mr. Dennehyâs, will be representing TEAM BOOMER in the marathon along with many other international runners.
    
    - Team Boomer â Fighting Cystic Fibrosis was developed by BEF and is a USATF-registered competitive club.
    
    - Those who are a part of Team Boomer participate in various races, obtain sponsors, and donate the pledges they receive to BEF. Team Boomer is designed to promote exercise and help raise funds for the Exercise for Life scholarship program for people with CF.
    
    - BEF is a leader in the area of academic scholarships and transplant grants and is now being proactive as the frontrunner in the area of exercise for individuals with CF.
    
    - Mr. Dennehyâs, located at 63 Carmine Street at Seventh Avenue, is a traditional Irish pub and restaurant known for its live music, great food and charming bartenders.
    
    - Mr. Dennehyâs has received rave reviews from Time Out New York, New York Magazine and CitiSearch and is a New York pub thatâs not to miss.

    
    
    For more info:
    
    o Call: 212-414-1223
    
    o www.mrdennehys.com
    
    o donal@mrdennehys.com

    ]]> general Fri, 27 Oct 2006 18:34:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=145233# podcast@esiason.org Jerry Cahill No http://cfpodcast.libsyn.com/index.php?post_id=140419#  
    The Power of Two - a family story of twins Isabel and Anabel surviving with CF
    
    Jerry Cahill interviews part time social worker, Isabel Stanzel Byrnes, who is 34 years old with CF post transplant 2.5 years (Isabel received the gift of life on February 6th 2004). Isabel has an identical twin sister, Anabel Stenzel, who also has CF and is post transplant 6 years.
    
    
    1. Isabel grew up in Los Angeles, California
    2. Diagnosed 3 days post birth
    3. At age 5 started having a lot of respiratory infections
    4. Isabel started having chronic pseudomonas at age 10
    5. Attended Stanford University undergraduate school
    6. Attended University of California, Berkeley graduate school
    7. Isabel and Ana lived in Japan and taught English for a few years
    8. Isabel has always been active in the area of exercise pre and post transplant and is an avid hiker.
    9. Isabel has been married for 8 years to a wonderful man and support person, Andrew Byrnes.
    10. "The transplant was a spiritual event" states Isabel.
    11. "I survived with CF and the transplant due to all my exercise, I had a lot of muscle strength"states Isabel.
    12. Isabel has competed in the United States Transplant Games that includes over 1800 athletes. Isabel won 1 gold and 2 silver medals!!
    13. Isabel and Anabel have written a book: The Power of Two. A family story about twins surviving with cystic fibrosis.
    14. For information on the book please contact Isabel at: isabear27@hotmail.com

     

    ]]> podcasts Fri, 13 Oct 2006 23:08:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=140419# podcast@esiason.org 00:36:56 Jerry Cahill Isabel Stanzel-Byrnes Interview Clean http://cfpodcast.libsyn.com/index.php?post_id=136566#
    
    When: October 15th 2006 from 11am to 4pm
        
    Where: The Yale Club in New York City
    
    Info: cfday2006@aol.com
    
    Phone:  800-622-0385
    
    Come hear nationally recognized speakers at this one time event.
    The event is free and includes lunch
    Everyone must register to attend
    Speakers will discuss:
    o     ways to obtain health insurance and make it cover treatments needed to fight CF
    o    Laws that protect children with CF in school
    o    Strategies for living a successful life with CF
    o    New drugs on the CF Horizon
    o    Treatments and care of children and adults with CF
    
    Due to cross infection no one with CF can attend this event.
    To find out other ways adults with CF can participate in this event please contact: cfday2006@aol.com or call: 800-622-0385]]> general Tue, 3 Oct 2006 02:04:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=136566# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=135176# TEAM BOOMER â FIGHTING CYSTIC FIBROSIS
    USA Track & Field Club #06-1114
    
    
    Millions of people worldwide are marathon runnersâ
    Millions of people worldwide jog, bike, swim, and exerciseâ
    Some people jog to stay in shapeâ
    People with cystic fibrosis jog to BREATHE!
    
    Because I have cystic fibrosis I want to prove that I can breathe.
    -Jerry Cahill/Age 50 Cystic Fibrosis Podcast

    
    
    Team Boomer â Fighting Cystic Fibrosis was developed by the Boomer Esiason Foundation (BEF) and is a USATF-registered competitive club. BEF is a leader in the area of academic scholarships and transplant grants and is now being proactive as the frontrunner in the area of exercise for individuals with cystic fibrosis (CF). Team Boomer is designed to promote exercise and help raise funds for the Exercise for Life scholarship program for people with CF, which helps them pursue their academic dreams.
    
    As an athlete, Boomer Esiason knows how important exercise is for improving health, especially for those with cystic fibrosis. Participating in sports and physical activity helps increase the quality of life and health, and teaches discipline. Like athletesâ dedication and daily regiments on the playing field, CF patients must be compliant to daily therapy and medication routines. Your lungs are muscles and need to be worked to keep them clear and strong â exercise should be part of EVERYONEâS daily routine. Team Boomerâs goal is to improve the quality of life and increase the lifespan of individuals with CF through the power of daily physical exercise.
    
    By sponsoring an athlete, you are helping the Boomer Esiason Foundation and Team Boomer raise money for the Exercise for Life Scholarship.

     

    Join Team Boomer Today

    Team Boomer Donor Sheet

    Team Boomer Pledge Sheet

    Team Boomer Sponsor Sheet

    ]]> general Thu, 28 Sep 2006 19:45:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=135176# podcast@esiason.org Jerry Cahill CF Clean http://cfpodcast.libsyn.com/index.php?post_id=125821#

    Title: CF Roundtable gives back to the cystic fibrosis community

    CF Roundtable is a newsletter for adults who have cystic fibrosis is published by United States Adult Cystic Fibrosis Association, Inc. (USACFA). Roundtable, now known as CF Roundtable, was founded in 1989 by an individual with CF, Lisa McDonough. CF Roundtable is an educational newsletter.

    Jerry Cahill interviews Board members of USACFA; Paul Feld (49 with CF post transplant 19 months), Cynthia Dunafon (42 with CF), Laura Tillman (58 with CF) and Kathy Russell (62 with CF)

    • CF Roundtable/USACFA is a independent, 501 c (3) tax exempt, non-profit organization whose Board of Directors all have CF.

    • CF Roundtable is published quarterly with over 1500 subscribers and available for $10.00/year. The newsletter is over 40 pages with color pictures and 75% consists of personal stories and a column by a medical professional

    • Web site: www.cfroundtable.com or via phone: 503-669-3561

    • Topics include: Being a parent, transplant, parents of newly diagnosed, when to tell employers, and insurance issues â to name a fewâ

    • Board members comments on âwhy they do the newsletter?â?

    
    

    • Cynthia: âgive back to the CF Communityâ?

    • Paul: âoffer my life experiences post transplant and make a differenceâ?

    • Kathy: âfun and educationâ?

    • Laura: âcontribute to CF societyâ?

    ]]> podcasts Fri, 1 Sep 2006 00:17:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=125821# podcast@esiason.org Jerry Cahill Clean http://cfpodcast.libsyn.com/index.php?post_id=113612# TITLE: Understanding CF Lung Therapies
    
    Dr. Joan DeCelie-Germana, director of the CF Center at Schneider Childrenâs Hospital in New Hyde Park, New York, and assistant professor of pediatrics at the Albert Einstein College of Medicine in the Bronx, New York discusses the importance in maintaining a consistent daily treatment regimen to manage lung disease.
    
    Â With the help of todayâs CF lung therapies, CF patients are now living longer and more active lives than ever before.
    Â Pulmonary treatments, especially the standard therapies, are critical to helping CF patients stay as healthy as possible.
    Â For optimum health, itâs important to adhere to a doctor-recommended treatment schedule each day, and to take the treatments in the right order.
     A recommended order of daily treatment for a CF patient is Bronchodialator, Pulmozyme (dornase alfa), The Vest or similar chest wall oscillator, and then TOBI (tobramycin solution for inhalation), but your doctor will recommend the treatment schedule thatâs right for you. Add-on therapies such as hypertonic saline may be appropriate for certain patient populations.
    Â Getting regular physical exercise and following a nutritious, high-calorie diet are also important for maintaining good health.
    ]]> podcasts Tue, 25 Jul 2006 21:02:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=113612# podcast@esiason.org 00:49:18 Jerry Cahill Clean http://cfpodcast.libsyn.com/index.php?post_id=113204#  

    

    Title: CFRI TEEN & ADULT DAY RETREAT
    
    The CFRI Retreat is August 6th and 11th in Menlo Park, California for teens, 15-18 years and adults with cystic fibrosis, their family members and health care providers. The event is fun, educational and a safe environment to meet some great friends!
    
    
    The retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF.
    
    Activities include daily exercise, arts & crafts, rap sessions, and educational workshops with guest speakers.
    
    Cost is $65  per person for entire week.
    
    Scholarships available.
    
    Safety is a top priority: ALL people with CF are required to comply with cross infection behavioral precautions. A medical advisor is available at all times, and volunteers are available to assist with respiratory treatments.
    
    For more info: http://www.cfri.org/home2.html

    ]]> general Mon, 24 Jul 2006 19:33:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=113204# podcast@esiason.org Jerry Cahill Clean http://cfpodcast.libsyn.com/index.php?post_id=107743# Title: Emily Schaller âRocks CFâ? through rock & roll musicâ

    
    1. Emily Schaller is 24 years old with cystic fibrosis and living in Detroit, Michigan. Emily believes her goal in life is to âspread awarenessâ? about cystic fibrosis and is doing so in her rock and roll band. www.letsrockcf.org .Emily was diagnosed at 18 months
    2. âI attended CF camps when I was younger but they were shut down due to cross contaminationâ so now people with CF go to cystic fibrosis chat roomsâ? states Emily.
    3. âTime managementâ? is Emilyâs biggest challenge due to all the therapy compliance.
    4. Emily is allergic to most medications therefore needs to be in hospital for iv antibiotics vs. home care.
    5. Emilyâs passions include rock & roll and Broadway shows.
    6. Activities such as drumming and jogging help keep Emily healthy.
    7. Emily is a drummer in a rock & roll band called âHELLENâ? and her brother Jason is also in a band called âSOUTH NORMALâ?.
    8. Detroit Rocks CF is a group of 12 local bands that play music for a worldly cause and have a benefit for CF called âJust Let Me Breathâ?
    9. Letâs Rock CF music cd available at: www.letsrockcf.com.
    10. âKeep goingâ stay activeâ play in a band or play sportsâ and live your life to the fullestââ? Emilyâs advice to others with CF.

    ]]> podcasts Thu, 6 Jul 2006 19:39:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=107743# podcast@esiason.org 00:28:00 Jerry Cahill Emily Schaller âRocks CFâ? through rock & roll music⦠Clean http://cfpodcast.libsyn.com/index.php?post_id=104580#  

    

    Living Breathing Proof

    Celebrating my 50th Birthday !

    Remember - Compliance, Nutrition, Exercise and Determination are the keys to having  a great quality of life with cystic fibrosis

    ]]> general Mon, 26 Jun 2006 20:43:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=104580# podcast@esiason.org cahill, cf, cystic fibrosis, esiason, boomer Jerry Cahill 50th Birthday Clean http://cfpodcast.libsyn.com/index.php?post_id=103633#

    Exercise For Life CF Athletic Scholarship

    Presented by the Boomer Esiason Foundation

    Details Coming Soon!

    ]]> general Fri, 23 Jun 2006 15:34:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=103633# podcast@esiason.org scholarship, cahill, cf, cystic fibrosis, esiason podcast@esiason.org Jerry Cahill's Exercie For Life CF Scholarship Clean http://cfpodcast.libsyn.com/index.php?post_id=101957# Schneider Childrenâs Hospital of North Shore LIJ Health Systems CF Nurses
    
    Title:
    
    CF Nurses âembrace patients and familyâ? and form a âpartnershipâ?
    
    Jerry Cahill interviews CF nurses, Lynn Bonitz and Susan Galvin, from Schneider Childrenâs Hospital of North Shore LIJ Health Systems in New Hyde Park, New York. Lynn and Susan have over 22 years of experience in nursing (12 in the world of cystic fibrosis) and maintain a âpositive attitudeâ?.
    • Lynn and Susan are part of a phenomenal âTEAMâ? at the large CF Center at Schneider Childrenâs of North Shore LIJ Health Systems that has over 200 pediatric patients and over 80 adult CF patients.
    • A typical day in the life of a CF nurse: âwe spend  of the day seeing patients in clinic followed by team meetings, phone triage, insurance issues, clinical studies, and involvement in emergency casesâ? states Lynn and Susan.
    • âWhat I like most about the job is working with the patients and their familiesâ? states Lynn
    • âThe patients are always positive and very resilientâ? states Susan.
    • Challenges with infants: âthe educational process for the family it is a long-term processâ? states Lynn
    • Challenges with adolescents: âhaving patients take control of their care and NOT abandoning careâ? states Susan.
    • Challenges with adults: â Learning to maintain a balance in lifeâ?
    • Advice: Lynn and Susan both recommend that patients should have a case manager at their insurance company. âCase managers can make things go very smoothlyâ?
    • Goal: âWe strive to give the best care and help our patients in every way we can and not treat them like medical recordsâ?
      ]]> podcasts Sun, 18 Jun 2006 16:55:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=101957# podcast@esiason.org 00:39:30 CF, cystic fibrosis, Susan and Lynn, Schneider Childrenâs Hospital, Jerry Cahill, Esiason Jerry Cahill LIJ Nurses Clean http://cfpodcast.libsyn.com/index.php?post_id=96202# Title: Richie Keane recommendation to all people with CF: âStay Clearâ?â
      
      Jerry Cahill interviews Richie Keane who is 49 years old and âloving and respecting lifeâ? Richie grew up in Long Island, NY and is one of 9 children (3 out of 9 have CF â one sister Valerie passed away and Jen Davison is doing well and recently did a podcast)
      
      - Richie grew up in Baldwin, NY.
      - Diagnosed at birth âI was a purple babyâ?
      - Richie was very active growing up playing football, baseball, and golf.
      - âI started getting sick around 18 years of age and had pancreas surgery at age 30â? states Richie.
      - The biggest challenge Richie faces is that his breathing has gotten tougher, the complications that develop from CF, and all the time involved doing medications.
      - Complications that Richie has experienced include: diabetes, pancreatitis, and osteoporosis (broke over 30 ribs)
      - Richie states: âliving with CF is tough but I love life and CF has taught me to respect lifeâ?
      - Richie has been married for 18 years to his wonderful wife Maryanne â she is a âspecial personâ? he states.
      - Listed for a double lung transplant Richieâs dog âgets me off my buttâ? and keeps him active prior to transplant.
      - Richieâs advice: âkeep your chin up, enjoy life, and take the time to get your lungs moving to keep them clearâ?
      ]]> podcasts Wed, 31 May 2006 20:11:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=96202# podcast@esiason.org 00:56:00 cf, cystic fibrosis, cahill, rich keane, richie, boomer esiason, bef Jerry Cahill Stay Clear Clean http://cfpodcast.libsyn.com/index.php?post_id=89378# Title: April Biggs âKeeps on Dancingâ? after Double Lung Transplant
      
      April Biggs is 31 years old and received the gift of a double lung transplant on August 15th 2004 at New York Presbyterian Hospital in New York City.
      
      -     April grew up in Jacksonville, Florida and was diagnosed with cystic fibrosis at one years old.
      
      -     Growing up the doctors told her parents âTreat April like a healthy person and to live as fully as she canâ?
      
      -     April started dancing at 5 years of age and is still dancing and choreographing post transplant.
      
      -     April attended Florida State University.
      
      -     âCF causes a lot of alienation due to the fear of catching germs from others with cystic fibrosis and thatâs a dragâ? states April
      
      -     âPeople with CF have a strong will to live and usually do pretty well getting through lung transplantsâ? states April
      
      -     âMy family is a GREAT support systemâ? states April
      
      -     Aprilâs FEVâs dropped from 85% to 30% and had a lot of hemoptosis which expedited the need for a transplant.
      
      -     Aprilâs recommendation to anyone with CF and anyone facing a lung transplant: âexercise and if you canât run, walk!â? alsoâ âlive your life to the fullest and do it!â?
      ]]> podcasts Thu, 11 May 2006 18:00:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=89378# podcast@esiason.org 00:49:40 april biggs, cf, transplant, lungs, cystic fibrosis, jerry cahill, esiason, boomer Jerry Cahill April Biggs Interview 05-11-06 Clean http://cfpodcast.libsyn.com/index.php?post_id=86693# Title: CFRI (Cystic Fibrosis Research Inc.) A great organization!

      CFRI is a very caring and committed organization to cystic fibrosis

      - CFRI started 31 years ago by parents of children with CF to give support and raise money locally on the west coast for research and to make a difference for people living with CF.

      - Carroll Jenkins, Executive Director, states: CFRI is a small group of 4 people and a few volunteers that wear many hats.

      - CFRI address: 2672 Bayshore Parkway, Mountain View CA 94043

      - Phone: 650-404-9975

      - http://www.cfri.org

      - cfri@cfri.org

       

      - Mission Statement: Cystic Fibrosis Research Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

      - Carroll Jenkins states: We believe in the value of collaboration with other organizations for one cause, and each organization can build on each others strengths. 

      - CFRI does both educational and fundraising events

      1.) 19^th Annual Educational Conference: August 4^th- 6^th,  2006, a three day event for adults with CF, caregivers, researchers, health care providers, family members, as well as the non-research community. Focus for this year's seminar: THE CYSTIC FIBROSIS JOURNEY: ALL AGES, ALL STAGES

      2.) Teen/Adult Day Retreat: August 6^th - 11^th 2006, for individuals with CF and their significant other. The goal is education, support, and fun

      3.) 22^nd Annual Golf Fundraising Tournament: August 7^th 2006 @ Cinnabar Hills Golf Club, San Jose CA.

      4.) Mother's Day Tea: May 14^th 2006. Ã Warmest appeal to connect people and the largest avenue of fundraising for CFRI.  You can get more info and donate at: cfri@cfri.org or call: 650-404-9981

      Carroll Jenkins states:  I am honored to work with CF. People with CF are amazing, not only do people with CF appreciate and value life, they appreciate the moment.

      ]]> podcasts Wed, 3 May 2006 19:17:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=86693# podcast@esiason.org 00:07:41 CF, cystic fibrosis, CFRI, Carroll Jenkins, Jerry Cahill Jerry Cahill CFRI - A Great Organization Clean http://cfpodcast.libsyn.com/index.php?post_id=81107# Bonnie Strangio $2500 Education Scholarship
      
      

      Application Deadline: June 30, 2006
      
      The Bonnie Strangio Education Scholarship was established in 2005 to honor the memory of Bonnie Strangio. The scholarship will be awarded to a person living with cystic fibrosis who, like Bonnie, has an upbeat personality and a "can-do" attitude and shows a tremendous passion for life in achieving their goals despite battling CF.
      
      Bonnie loved life and everything in it. She appreciated family, friends, and people in general. She always offered a patient ear to listen to friends. Bonnie held a B.A. in Psychology and Masters in Teaching that took her down the career path of a special education teacher in a New Jersey high school where she focused on allowing learning disabled students to integrate in mainstream society. Strong, brave, and giving, she never felt sorry for herself but strove to make the best of everything. Everyone, young and old, loved her!
      
      CRITERIA
      An undergraduate or graduate student who has cystic fibrosis and whose service and commitment to the prevention and cure of cystic fibrosis is exemplary.
      
      SELECTION PROCESS
      - Candidate will complete an application.
      - Candidate will submit all necessary documentation including:
      - Essay on post graduation goals.
      - Recent photo.
      - Letter from physician confirming CF diagnosis.
      - Most recent W2 form verification for both parents.
      - Transcript (high school, college, or graduate).
      - Letter of acceptance from academic institution.
      - The committee will choose finalists who will be interviewed thereafter.
      - The award recipient will be chosen by a majority vote.
      
      
      SELECTION TIME PARAMETERS
      Fall term
      
      APPLICATION
      Available at the Boomer Esiason Foundation web site: http://www.esiason.org
      
      Available at: http://www.cfscholarships.com/bonnie_strangio_scholarship.html
      
      
      CONTACT
      
      Boomer Esiason Foundation
      c/o Jerry Cahill
      417 Fifth Avenue, 2nd Floor
      New York, NY 10016
      Phone: 646-344-3661
      Fax: 646-344-3757
      
      EMAIL QUESTIONS TO: jcahill@esiason.org

      ]]> podcasts Mon, 17 Apr 2006 19:03:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=81107# podcast@esiason.org cf, cystic fibrosis, Bonnie Strangio, Jerry Cahill, Esiason, BEF, Boomer Jerry Cahill Register For Bonnie Strangio Education Scholarship Clean http://cfpodcast.libsyn.com/index.php?post_id=74582# NO LIMITS!!!!
      
      
      Jerry Cahill interviews Jennifer Davison who is 37 years old and living strong, succeeding and NOT letting cystic fibrosis get in her way. Jennifer grew up in Long Island, New York and is a registered nurse at Long Island Jewish/North Shore Medical Center.
      
      1. Jennifer is one of 9 children, 3 with CF.
      2. Jennifer attended Fashion Institute of Technology (FIT) and after working in the fashion industry decided to focus her career in the health field of nursing
      3. Married to Tim and with a beautiful daughter â Dara â Jennifer âjuggles 3 jobs - career, family, and healthâ?
      âI was treated NORMAL growing up â with a big family there was no time to feeling sorry for yourselfâ? states
      4. Jennifer âwe just got off our butt and livedâ?
      5. Jenniferâs first hospitalization came at age 17 years old.
      6. âBeing active is the key to good quality of life â I ski, play racquetball and ride my bikeâ? states Jennifer.
      7. Jennifer states: âCF is part of who I am but does not define meâ?
      8. âCF does NOT stop me from living â I just get out there and LIVEâ?
      9. Jennifer recommends that ALL people with CF should âget up at out and enjoy life and do not put restrictions on yourselfâ?
      ]]> podcasts Wed, 29 Mar 2006 23:31:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=74582# podcast@esiason.org 00:38:08 cf,cystic fibrosis, cahill, long island jewish hospital, jennifer davison podcast@esiason.org No Limits !!! Clean http://cfpodcast.libsyn.com/index.php?post_id=69016# podcasts Tue, 14 Mar 2006 02:54:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=69016# podcast@esiason.org 00:07:38 cahill, cf, cystic fibrosis, booming celebration, esiason, boomere Jerry Cahill 2006 Booming Celebration - iPod Video No http://cfpodcast.libsyn.com/index.php?post_id=67370# Sacks for CF Scholarship Program 2005 Winners

      Sacks for CF will award scholarships to the following 15 people with CF who are striving for therapy adherence and academic success.

       

       

      
       

      Name	City	College
      John Anthony	Erie, PA	Mercyhurst College
      Bailey Broadbent	Canton, OH	Kent State
      April Christensen	Parker, SD	University of Nebraska
      Keith Connolly	Cincinnati, OH	Xavier University
      Jessica Coulter	Winston-Salem, NC	Salem College
      Nicole Ellis	Islamorada, FL	Stetson University
      Phillip Fett	Dripping Springs, TX	Saint Edward's University
      Michelle Green	Medina, OH	Ohio State University
      Philip Griffin	Pottsville, PA	Embry Riddle Aeronautical
      Erin Keitges	Allen, NE	Morningside College
      John Meadows	Pickerington, OH	University of Cincinnati
      Charlotte Reardon	Olney, MD	University of Rochester
      Kristina Swecker	Cleveland, WV	West Virginia Wesleyan
      Jessica Weiner	Amherst, MA	Mount Holyoke College
      Matthew Weinshenker	Manalapan, NJ	Rider University

      Sacks for CF is a scholarship program funded by CHIRON CORP. the makers of TOBI for inhalation.

      Congratulations on a job well done!!!

       

       

      ]]> podcasts Thu, 9 Mar 2006 20:18:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=67370# podcast@esiason.org 00:02:50 cahill, cf, cystic, fibrosis, cystic fibrosis, scholarship, boomer esiason, TOBI Jerry Cahill Sacks For CF Scholarship Winners Clean http://cfpodcast.libsyn.com/index.php?post_id=62995# TITLE: Exercise for Life
      
      Jerry Cahill, 49 with cystic fibrosis, discusses the importance of exercise and explains the âgadgetsâ? he uses while jogging.
      
      1. âThe single most important therapy in my life that keeps me healthy is exerciseâ? states Jerry
      
      2. Jerry believes that being outdoors in the fresh air is much better than being locked inside on a treadmill
      
      3. âI try to exercise outdoors even when I am on IV antibiotics as it helps clear out my congestionâ?
      Jerry jogs with a small oxygen tank, prescribed by his doctor due to shortness of breath. I use a âcamelbakâ? backpack that is       normally used by bikers for hydration. http://www.camelbak.com
      
      4. âI believe in training smart so I use a Polar Heart Rate Monitor to time my walking/jogging and keep track of my heart rate and exercise training zones. http://www.polarusa.com
      
      5. âWhen I exercise I need to wear an oximeter that measures the oxygen saturation in your blood since my oxygen levels sometimes drop below 90%. The oximeter (WristOx 3100) keeps me in check so I do not hurt myself and get the full benefit of exercising my lungs, which are muscles and need to be workedâ? http://www.nonin.com
      
      6. âI have been exercising and jogging since I was 9 years old and it has improved my quality of life living with CF. I believe everyone with CF can and should do some form of exercise daily â even if you start with walking and build up to joggingââ?
      ]]> podcasts Tue, 28 Feb 2006 10:33:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=62995# podcast@esiason.org cf, cystic fibrosis, health, fitness, jerry cahill, esiason, boomer Jerry Cahill Episode #0029: iPod Video Exercise For Life Clean http://cfpodcast.libsyn.com/index.php?post_id=61200# Detroit Rocks Cystic Fibrosis !
      
      Detroit Rocks CF is the first album put out by the Detroit run Rock CF Foundation. The CD features twelve of Detroit's finest rock bands. Each band donated one track to the album that will sell for $10. with all proceeds going to the Cystic Fibrosis Foundation.
      
      1. The album will officially be released at this years Just Let Me Breathe benefit for Cystic Fibrosis.
      2. This year's benefit show will be Friday, February 24th 2006 at the Royal Oak Music Theatre in Royal Oak, Michigan.
      3. The idea for Detroit Rocks CF was thought of by Emily Schaller, drummer for the band Hellen.
      4. Emily, 24, has cystic fibrosis, a genetic disorder that affects 30,000 Americans
      5. Emily states: "The thought of bringing a dozen of the best Detroit bands together on one CD all in the name of CF is amazing! It means so much to me that the people of Detroit care and are willing to help such a great cause."
      6. Visit www.letsrockcf.org for more information and to order a copy of the CD
      ]]> podcasts Tue, 21 Feb 2006 22:28:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=61200# podcast@esiason.org 00:05:03 CF, cystic fibrosis, Detroit Rocks, Jerry Cahill, Esiason Jerry Cahill Detriot Rocks CF Clean http://cfpodcast.libsyn.com/index.php?post_id=59434#

      Hey everyone, Stacey Wu just completed my new logo

      Thanks, Stacey!

      ]]> general Thu, 16 Feb 2006 22:55:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=59434# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=58719# Title: Reardon Runs With CF â Not From It!
      
      Jerry Cahill interviews Charlotte Reardon and states â I enjoyed meeting Charlotte â she is a selfless young woman that is full of passion and hopeâ?
      
      Charlotte is 20 years old with cystic fibrosis and is Living, Breathing and Running to stay healthy. Currently attending the University of Rochester in Rochester, NY and studying psychology in Austria for the spring semester.
      
      1.    Charlotte grew up in Olney, Maryland and was diagnosed at 2 weeks of age and has 3 sisters.
      2.    In the hospital a lot for iv antibiotic therapy during grade school, Charlotte also had a feeding tube inserted in 7th     grade.
      3.    After some of her CF clinic friends died â Charlotte decided to âtake control of her diseaseâ?
      4.    âExercise is my main form of therapyâ? states Charlotte.
      5.    Ms. Reardon attributes her success to her father, John Reardon, who first pushed her into running.
      6.    âIn all honesty Iâm kind of in denial,â? states Charlotte. âI like to think of myself as someone whoâs healthy. I have CF, but at the same time I am determined to do anything I want to doâ?
      7.    âCF is a cross in life but it made me tough!â? states Charlotte.
      8.    Charlotte believes âDoctors need to stress exercise to their CF patients and everyone with CF needs to get out there and do somethingâ?
      9.    âBreathing [while running] is harder for me than it is for other people, Reardon said. But the more running I do, the easier I can breathe and the better I feel.â?
      10.    Charlotteâs advice to others with CF âDonât let it stop you â just get out there and live!â?
      ]]> podcasts Wed, 15 Feb 2006 00:19:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=58719# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=55909# Pictured on Right (Left to Right) Jerry Cahill with Lisa Yourman, Dr. Joan Germana and Boomer Esiason.

       

       

       

      Heroes of Hope Award Photo Gallery

      share.shutterfly.com/action/welcome?sid=8AbOW7Fq4buXFg

       

      This Story appeared in Heroes of Hope Blog...

       

      Heroes of Hope â Living with CF
      
      49-Year-Old Brooklyn, New York Resident with Cystic Fibrosis Receives National Award
      
      The Heroes of Hope TM Living with CF Program Advisory Panel is pleased to announce Jerry Cahill as the January 2006 award recipient in recognition of his positive attitude and tenacious spirit, The Heroes of Hope program honors people with cystic fibrosis (CF) who give hope to others. Jerry was chosen from a nationwide pool of candidates for his ability to inspire others with CF through his positive attitude, commitment to proactively manage his health, determination, community outreach, and achievement.
      
      Jerry states:
      âI wanted to thank the Heroes of Hope Committee and Genentech â makers of Pulmozyme â for this honorâ?
      
      âI also wanted to thank my family, friends, doctors, and the Boomer Esiason Foundation for ALL your supportâ?
      
      âI share this award with every person with cystic fibrosis that is living, breathing, and fighting everyday to win the battle with this diseaseâ?
      
      
      For questions regarding the Heroes of Hope â Living with CF program, please call 1-866-288-1893
      Or visit the web site: http://www.pulmozyme.com/hoh/hoh_landing.jsp

      Jerry's Speech

      HEROES OF HOPE (Living with CF)
      
      I wanted to thank the HEROES OF HOPE Committee and Genentech â makers of Pulmozyme - for this honorâ
      
      I also wanted to thank my family & friends, doctors, and the Boomer Esiason Foundation for all your supportâ
      
      In the past I have received awards for pole vaulting over 16â0â? and increasing sales volume from $26M to $29M but it is a little eye-opening to get an award related to âliving with a diseaseâ?â so I thought about it and looked up the definition of âHEROâ? in my Websterâs pocket dictionary.
      
      Hero â one that is much admired or shows great courage.
      
      This award needs to be shared with manyâ
      
      1.) I share this with every person with cystic fibrosis that is living, breathing, and fighting for survival as it takes a lot of courage & work both physically and emotionally.
      
      2.) My family, in particular my MOM, they are all heroes as they had to deal with a lot on a daily basis growing upâI remember being diagnosed at age 11 and the doctors telling my parents âyou are lucky if your son lives to be 18 years oldâ?, WELLâ I am 49 and still here today and donât plan on loosing the battle with CF any day soon. I owe a lot to my family because they never put me in a bubble and kept me very involved in sports â I thank youâ
      
      3.) My sister Laurie and friend Mike who help me out alot when I need extra physical therapy when I am sick and really should be in the hospital â thank you
      
      4.) My doctorsâ I had and have many â one past away, one retired, and some never partnered up with me so I moved on
      
      Dr. Schulman, who I have been with for over 7 years - he has been a great partner and deals with a lot of issues â he has his hands full with me as I am not an easy patient â I thank you, itâs a delight working with you as a doctor â I consider you a friend
      
      5.) The Boomer Esiason Foundation for your support and giving me a âsafe havenâ? by letting me volunteer and empowering me as I await a Lung transplant.
      
      That leads me to the definition of HOPE...
      
      HOPE â desire with expectation of fulfillment
      
      In receiving this award, my hope is that PARENTS of children with CF will NOT feel guilty and NOT cover their loved one in bubble wrap but let them live life to the fullest!
      
      And for individuals living with CF my hope is that ALL will be very compliant to there medications/therapies and get involved in VIGOROUS EXERCISE on a daily basis.
      
      I believe, that through daily exercise, everyone with cystic fibrosis will be LIVING, BREATHING PROOF that can have a full and productive life while we wait for a cure.
      
      THANK YOU

      ]]> general Mon, 6 Feb 2006 23:00:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=55909# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=51559# podcasts Thu, 26 Jan 2006 00:13:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=51559# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=51554# Sacks for CF Scholarship Program 
      • Sacks for CF is a scholarship program funded by CHIRON CORP. â the manufacturers of TOBIÂ for inhalation.
      • Jerry states: âTOBIÂ has made a major impact on treating respiratory infections and has given me a better quality of lifeâ?
      • CHIRON CORP has given a charitable grant of over $170,000. To the Boomer Esiason Foundation Grant Program.
      • Sacks for CF will award 15 scholarships to people with CF who strive for therapy adherence and academic success.
      • Scholarship details and applications are available at: www.sacksforcf.com

      More information is available by visiting the Boomer Esiason web site: www.esiason.org
      Deadline for ALL applications: Friday, February 24th 2006
      Winners announced: Friday, March 10th 2006

      ]]> podcasts Wed, 25 Jan 2006 23:46:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=51554# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=49286# podcasts Wed, 18 Jan 2006 19:59:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=49286# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=47001# Alison Cain Podcast
      
      
      Title:
      Allison Cain can finally breathe after transplant and no more âCF boot campâ?
      
      
      Jerry Cahill interviews Alison Cain who is 34 years old and had a double lung transplant at New York Presbyterian Hospital in NYC 1 Â years ago due to progression of cystic fibrosis. Alison grew up in Connecticut and has returned to work teaching high school Spanish.
      
      - Alison was diagnosed at 1 Â years of age due to a âstrange coughâ? and âfailure to thriveâ?
      - Alison attended Fordham University in New York.
      - Sports kept Alison healthy for a long time prior to transplant: âI was a competitive swimmer from age 4 to 13 years of age. I also played soccer, softball, and ran cross country trackâ?
      - Alison was never hospitalized for cystic fibrosis until the age of 19.
      - At age 28 Alison developed CF related diabetes.
      - June 16, 2004 Alison had a double lung transplant that lasted 6 hours and was hospitalized for 10 days.
      - Alison believes, after many years of battling CF, that a transplant is the only true cure for CF and that her life is so much happier now.
      - Alisonâs advice: âBe compliant to therapy/med.âs and donât give up hope.
      ]]> podcasts Tue, 10 Jan 2006 19:52:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=47001# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=43255# Holiday Photo Album
      ]]> general Sat, 24 Dec 2005 17:12:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=43255# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=43134# Laurie McDonald Podcast
      
      
      Title:
      Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference
      
      
      Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical Center in Chapel Hill, North Carolina. Laurie works closely with the medical team, patient, and family to make sure everything runs smoothly with the transplant.
      • Laurie is involved in lung, heart, liver, and kidney transplant social work.
      • Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC.
      • âFinancial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and familyâ? states Laurie
      • UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release.
      • Laurie recommends setting up a âfundraising teamâ? ASAP once you are listed to help ease the financial burden of unexpected expenses.
      • Laurieâs advice:
        1. âLive everyday /minute of your life and donât count on transplant to turn your life aroundâ?
        2. âPrepare Financiallyâ?
        3. âExercise â the surgery and recovery will go smootherâ?

        
        
        
         

      ]]> podcasts Sat, 24 Dec 2005 01:17:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=43134# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=40786# Al Iannello Gives the âGift of Breathâ? this Holiday Season
      
      Jerry Cahill interviews Al Iannello.
      
      Al is 41 years old with cystic fibrosis and another adult âliving, breathing, and succeeding with CF. Al Iannello recently donated a therapy vest to another individual in need with CF.
      
      * Al Iannello was diagnosed at birth after he âdied at birthâ?
      * Al has 1 brother and 2 sisters and his older sister also has CF and is 48 years old
      * Growing up Al was very involved in baseball, football, and basketball.
      * Al states: â I just deal with my condition and live a normal lifeâ?
      * âI come from a very close family and they ALWAYS are by my sideâ?
      * Al is always positive and a fighter - âhaving CF is not the end of the worldâ?
      * âDonât live in the North Pole and be isolated, you should be part of and get involved in the communityâ? states Al Iannello.
      * Alâs recommendation: âDo what you have to do to stay healthy and move forward in life!â?
      ]]> podcasts Wed, 14 Dec 2005 17:19:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=40786# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=36862# Scott Johnson: The Tri-Athlete (swim, bike, run)
      
      
      
      Jerry Cahill interviews Scott Johnson about training for an âIronmanâ? Triathlon
      
      Scott Johnson at age 33 has been living with CF, living 4 years out with a double lung transplant, and now living with the accomplishment of competing in over 18 triathlons.
      
      Scott recently competed in the FLORIDA IRONMAN â the most elite of triathlon competitions â on November 5th in Panama City, Florida.
      • IRONMAN Triathlon consists of swimming 2.4 miles, biking 112 miles, and finishing with a 26.2 mile run
      • Scott states: âPrior to my transplant, I made a list of things Iâd like to accomplish and a triathlon was one of my wishesâ?
      • âOne year after my double lung transplant I started training hardâ?
      • Scott is sponsored by the Wilmington YMCA
      • Scott trains 6 days a week for a total of 30 hours.
      • Additional nutritional supplements include pre-natal vitamins and protein shakes.
      • âLife is precious and I am living it to the fullestâ? states Scott
      ]]> podcasts Mon, 28 Nov 2005 20:02:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=36862# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=33610#
      
      Jerry Cahill interviews Scott Johnson about his double lung transplant
      
      
      Scott Johnson is 33 years old with cystic fibrosis and had a double lung transplant 4 years ago on September 15th 2001 at University North Carolina Medical Center in Chapel Hill, North Carolina.
      • Scott grew up in Jacksonville, North Carolina
      • At 27 years old with a sinus infection Scottâs lung x-rays looked like a âblizzardâ?
      • Scott was listed for 2 years, the surgery was 9 hours, and he was hospitalized for 17 days.
      • Scott prepared for the transplant by exercising on a treadmill and weights and going to support groups.
      • âExercise and a Positive Attitudeâ? helped Scott make it through the surgery
      • Scott states: âMy quality of life with my new lungs is better than living with CFâ?.
      • Scott words of encouragement for others listed for a transplant: âMaintain a positive outlook and keep exercising!â?

        
         

      ]]> podcasts Mon, 14 Nov 2005 17:03:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=33610# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=31458# Scott Johnson: Growing up with CF (part 1)
      
      
      Jerry Cahill interviews Scott Johnson in 3 parts:
      1. Growing up with CF
      2. The Double Lung Transplant
      3. The Triathlete
      
      
      Scott Johnson is 33 years old with cystic fibrosis and training hard in sports regardless of the fact that he has CF and underwent a double lung transplant 4 years ago at UNC Chapel Hill, North Carolina.
      • Scott grew up in Jacksonville, North Carolina
      • Diagnosed with CF at 2 months due to pneumonia and a lung collapsing
      • Scott was always embarrassed about hi coughing growing up but still was very involved in sports.
      • Scott states: âCF has shaped and played a MOJOR role in my life growing up â people with CF donât make plans for the futureââ?
      • âExercise and a Positive Attitudeâ? these are Scottâs most important factors to maintaining Scottâs health.
      • Scott states: âThe biggest challenges facing adults with CF is insurance and medical expenses as people are living a lot longer with cystic fibrosisâ?
      • Scott believes, âyou have to own it and manage your CFâ?
      • âI have CF but it does NOT have meâ  
      ]]> podcasts Fri, 4 Nov 2005 19:32:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=31458# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=28528# National Transplant Assistance Fund -The Financial Link to Transplantation
      
      
      Jerry Cahill interviews Lynne Samson, the Executive Director of the NTAF on how they can help with fundraising for a costly lung transplant.
      
      Mission Statement: To help raise funds for transplant and catastrophic injury patients by providing compassionate support, education and expertise to them, their families and communities.
      • NTAF is a nonprofit 501 (c) 3 charitable organization and contributions to NTAF are tax-deductible. NTAF was founded in 1983
      • Lynne states: "it's better to start fundraising as soon as you are listed at a transplant center"
      • Lynn states: "people in the community love to support a cause and this gives emotional support to the patient and family going through the crisis"
      • Fundraising events include: golf outings, spaghetti dinners, chicken fries, dances, and car washes,  to name a few.
      • Money can be used for insurance co-pays, medications, re-locating for a transplant, meals, lodging, and living donor costs.
      • NTAF has over 1200 active patient accounts and has risen over $4 million this year.
      • "The goal of NTAF is to help the patient and family feel financially, emotionally, and mentally secure and that through the community support they will feel cared for"

      National Transplant Assistance Fund

      ]]> podcasts Fri, 21 Oct 2005 17:02:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=28528# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=26240# podcasts Fri, 14 Oct 2005 17:24:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=26240# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=25441# âJump Driveâ? for Better Health Care
       
      Jerry Cahill interviews Dr. Jamie Wells on putting medical information on a âjump driveâ?
      • "Jump Driveâ?: also know as a USB drive or flash drive is a âplug-and-playâ? portable storage device that is lightweight enough to attach to a key chain that cost under $20.
      • Dr. Wells states: âjump drives empowers us in our health care and enables patients to be their own advocates
      • Medical information & records can be stored on a âjump driveâ? and this is extremely important to someone with a chronic disease or medical condition for doctor visits and emergency room visits.
      • âJump Drivesâ? contain such information as emergency contacts, physicians contacts, past medical history, allergies/adverse effects, current medications, and laboratory test information.
      • The BOOMER ESIASON FOUNDATION  will be putting a âJump Driveâ? Medical Template up on their site (www.esiason.org) and offering the drives to individuals with CF with proper documentation.
         
      ]]> podcasts Thu, 6 Oct 2005 17:32:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=25441# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=22632# The âPod Daddyâ? wants to hear your comments on the Cystic Fibrosis Podcast.
      
      
      
      Please click on comments or email me at jcahill@esiason.org and let me know your thoughts and what you want to hear more about.
      
      
      
      Recent comments:
      
      I really love the podcasts! These things are exactly what kids and young adults with CF need to see and hear. I canât tell you how often I fell alone in my fight with CF. Your site, I think, is out there to give the same support that I found in my family. This site has so much hope in it! (Ohio)
      
      
      I really like your site â itâs very informative. (Louisiana)
      
      
      I am impressed with the podcasts and would like to hear more about CF individuals with digestive, kidney, and liver issues.
      
      I found the podcasts âfascinatingâ? It was wonderful to listen to the inspirational stories of others LIVING with cystic fibrosis. I found it incredible how open and honest the people you interviewed were.
      
      âWOW!â?
      ]]> general Wed, 21 Sep 2005 16:49:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=22632# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=20364# Dylan Mortimer, at 25 "Keeps the Faith",in Battling CF and Focuses on Being an Artist and Graduate School
      
      Jerry Cahill interviews Dylan Mortimer
      
      * Diagnosed at 6 months of age in St. Louis
      * Dylan also has a 23 year old brother with cystic fibrosis
      * Growing up Dylan had a cough and was not hospitalized for a "tune up" until age 17.
      * Dylan exercises at a gym doing the treadmill and weight training
      * Dylan moved to NYC about a year ago and is attending the School of Visual Arts Graduate School and got married in May 2005
      A newlywed Dylan believes "Love transcends all, even cystic fibrosis"
      * "Although living with CF brings a lot more baggage and weighs you down, it makes you appreciate life "states Dylan.
      * Dylan states: "My Faith in God helps me accept CF and gives me the energy to fight the battle"
      ]]> podcasts Thu, 8 Sep 2005 17:04:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=20364# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=20039# general Tue, 6 Sep 2005 18:24:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=20039# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=18630# Jerry Cahill interviews Cris Dopher

      "I live to Run and Run to Live" States Cris Dopher, 34 Years Old, Who is Taking Cystic Fibrosis by the Throat and Taking Control of His Life.

      • Diagnosed at 4 years old due to âfailure to thriveâ?
      • Cris grew up in Southern California and Missouri prior to moving to NYC
      • âMy parents did not panic when they heard the news about my diagnosis with CFâ?
      • Cris has 2 sisters and I brother
      • Attended Missouri State University as an undergraduate and New York University for graduate work in Fine Arts.
      • Mount Sinai in New York is Crisâ CF Center
      • Biggest challenge: âTime spent on treatmentsâ?
      • âAlthough having CF is a major wake-up callâ I try to see things in a more positive way and that opens up new doors and possibilitiesââ?
      • Cris believes the most important factors that keep him healthy are: âFamily support, great doctors, and his motivation to researchâ?
      • Cris completed the Flying Pig Marathon in Cincinnati, Ohio in a time of 5 hours 25 minutes.
      • Cris plans on running the New York City Marathon in 2006 and his goal is sub 5 hours
      • âYou are not alone with CF and therefore I like to contribute to the CF community.
      ]]> podcasts Mon, 29 Aug 2005 19:43:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=18630# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=16671# Maggie Talboy interviews Jerry Cahill - "Better Living Through Chemistry"
      • âMy life is not about the cystic fibrosisâ itâs about living and enjoying everyday!â?
      • Jerry was diagnosed at age 11 after several hospitalizations for pneumonia.
      • Jerry comes from a very athletic family that includes 4 brothers and 1 sister.
      • Jerry attended Xaverian High School in Brooklyn, NY and then went on to the University of Connecticut where he competed in varsity track &  field specializing in the pole vault.
      • CF is a challenge and a competitionâ I will beat it as best I can because life is NOT a controlled experienceâ?
      • Jerry states: âI do not have time to sit around with IMPENDING DOOM â go out and experience life and manage your diseaseâ?
      • Jerry âexercises for lifeâ? and believes that âexercise can slow down the progression of the diseaseâ?
      • Jerry believes in being pro-active with his health and is very involved in NUTRITION including: I.V. vitamin drips, âlotâs of vitamins and juicingâ? and of course âexerciseâ?
      • Listed for a double lung transplant at NEW YORK PRESBYTERIAN and also seen at UNIVERSITY of NORTH CAROLINA at CHAPEL HILL â Jerry is very happy with his TEAM of doctors.
      • Maggie asked Jerry what keeps him going...? âA passion for life and being involved with people, watching people grow and most important giving of yourself â not materialistic things.
      • Jerry states: âI have my FULL METAL JACKET on and am ready for the transplantâ!

        
         

      ]]> podcasts Wed, 17 Aug 2005 00:44:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=16671# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=15582# Jerry Cahill interviews Dr. Jamie Wells
      • Dr. Wells grew up in Philadelphia before attending YALE UNIVERSITY majoring in American Studies.
      • Dr. Wells attending JEFFERSON MEDICAL SCHOOL in Philadelphia where she started out specializing in brain surgery prior to focusing on
        pediatrics.
      • âMedical school = one paragraph on cystic fibrosisâ all training comes from hands on at a CF Centerâ? states Dr. Wells
      • As an infant with CF: âBurden on parents to understand and deal with everything all at onceâ?
      • Dr. Wells states: âThe teenage years are the most challenging as the typical teenager is not compliantâ?
      • âDoctors and CF patients must have a PARTNERSHIPâ?
      • Dr. Jamie Wells states: Due to the prognosis of the disease, âcystic fibrosis patients are dynamic and grow up very very quicklyââ?
      • Dr. Wells strongly believes: âPeople with CF need someone to look up to and see that there are people living at age 49ââ?
      • Regarding Stem Cell Research: âI am an advocate of anything that is going to advance scienceâ?
      • Dr, Wells Rx for people with CF: âBe consistent with med.âs and therapy, even when you are feeling well, and maintain an optimal nutritional state so you can fight infectionâ?
      • âI am honored and privileged to know patients and their families with this diseaseâ people with CF really get what is about to be alive!â?
      ]]> podcasts Tue, 9 Aug 2005 03:02:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=15582# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=14676# The Boomer Esiason Foundation and the Ohio Society for Respiratory Care award $1500 in memory of Heidi Norris RRT.

      Heidi Norris was a Registered Respiratory Therapist who passed away in 2004 after a long hard battle with cystic fibrosis that included a double lung transplant in 1999.

      Michael will be attending Youngstown State University in Ohio and majoring in tge field of Respiratory Care "Sharing the Breath of Life with Others"

      ]]> podcasts Tue, 2 Aug 2005 02:37:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=14676# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=12373# Jerry Cahill Interviews Erin Keitges
       
      Erin was diagnosed with CF at 3 months due to "failure to thrive"
      Erin's mom, dad, older brother and sister are very supportive
      Growing up Erin's mom states: "Erin was treated like everyone else in the family" and not put in a glass jar"
      Academically Erin is ranked #1 in her class
      Erin is involved in high school varsity basketball, volleyball, band, choir, and has mastered Track & Field in both the 3200meters and 1600meters where she won and set school records in May 2005
      "Multi-tasking!" that is the key to Erin's success and fitting a lot of living into a single day
      Living with CF? Erin states: "some days are harder than others but I live my life and go on..."
      ]]> podcasts Sat, 16 Jul 2005 05:15:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=12373# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=12372# general Fri, 15 Jul 2005 13:48:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=12372# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=11946# general Tue, 12 Jul 2005 01:29:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=11946# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=10224# Ashley White, Awaiting a Double Lung Transplant at Duke Medical Center, Looks Forward to Being Able to "Breathe Again"
      
      Jerry Cahill interviews Ashley White
      • Ashley White was diagnosed with cystic fibrosis at 4 months of age.
      • Ashley has 4 sisters and 2 brothers, one brother also has CF.
      • Ashley attends home school daily.
      • Medication, therapy, more medication, and more therapy Ashley spends many hours a day being compliant to here routine trying to stay healthy along with nightly tube feeding.
      • Ashley enjoys scrap booking and spending time with her friends and family.
      • Listed for a double lung transplant in March 2005 after being on oxygen 24/7 and when her FEVs dropped below 24.
      • Ashley, along with her mom, had to face and make the big decision regarding the double lung transplant surgery.
      • My Mom has been the biggest influence on my life
      • KEEP GOING! Ashleys advice to others with CF and facing a transplant.
      • Without my Mom, who pushes me, I may have giving up
        
         
      ]]> podcasts Thu, 7 Jul 2005 05:16:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=10224# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=10216# Lisa White's Daughter Awaits a Double Lung Transplant at Duke Medical Center and Her Faith & Family Give Her Strength
      
      Jerry Cahill interviews Lisa White
      • Lisaâs daughter is awaiting a double lung transplant at Duke Medical Center in Durham, North Carolina.
      • Lisa has the endless support from her family, friends, and faith.
      • Lisa stressesâ? âStay positiveâ? and keep on âliving lifeâ? regardless of the obstacles.
      • âKeep researching EVERYTHING on cystic fibrosis and lung transplantsâ? and most of all be âPRO-ACTIVEâ? and âVIGILANTâ?
      • Lisa states: âAshley and I never give up, you must have the SURVIVAL INSTINCT or LIFE WILL STOP!â?
      ]]> podcasts Fri, 1 Jul 2005 11:00:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=10216# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=10059# general Mon, 27 Jun 2005 03:51:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=10059# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=8182# Jerry Cahill interviews Amy Purdy
      
      
      Amy Purdy has been a social worker at Saint Vincentâs CF Center, in New York City, for over 8 years and âloves helping peopleâ?
      • Amy grew up in Long Island, NY
      • SUNY Albany undergraduate degree
      • Adelphi University graduate degree in Social Work
      • St. Vincentâs has over 170 cystic fibrosis patients where Amy works full time for the center.
      • Amy has great relationships with her patients and knows âwhat there favorite flavor is in bubble gumâ?
      • Amy deals with various issues including; medical insurance, medication compliance, educating families on CF, transplant issues, and âjust being thereâ? for the patientsâ?.
      • Amy states: âTeen years are critical for medication/therapy compliance, as this sets the stage for your future healthâ?.
      • St. Vincentâs has a âphone a friendâ? program for CF teens to speak to adults with CF
      • Amyâs goal: âTake the burden off the young adults by becoming like a personal assistantâ?
      • Amyâs advice to families: âUse ALL the resources at your CF Centerâ?
      ]]> podcasts Mon, 6 Jun 2005 04:41:22 GMT http://cfpodcast.libsyn.com/index.php?post_id=8182# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=7825# I just received my new T-shirt that says "CF Sucks" and it does...
      I have been on iv antibiotics for over 4 weeks and still have a lot of congestion... I am at the point these medications don't work - WE NEED NEW DRUGS!!!
      ]]> general Wed, 1 Jun 2005 18:21:59 GMT http://cfpodcast.libsyn.com/index.php?post_id=7825# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=7304# Kristy Denninger Enjoying Life at age 28 with Cystic Fibrosis
      
      Jerry Cahill Interviews Kristy Denninger
      
      Kristy Denninger is 28 years old and has a phenomenal support team of family, boyfriend, and friends.
      • Kristy was diagnosed with CF at 3 months do to âfailure to thriveâ?.
      • Kristy at age 14 also diagnosed with Diabetes.
      • Degree in Social Work from St. Thomas College in New York.
      • Kristy enjoys: âFamily, Friends, and Vacationingâ?
      • âRelaxing on the Beach is great for my Spiritual and Physical Healthâ?.
      • Kristy raised over $10,000 this year for CFF âGreat Stridesâ?.
      • Kristy states: âExercising on the treadmill for 20 minutes per day helps keep me healthyâ?.
      • Kristy believes in âstaying positiveâ? and is empowered by the online Cystic-L Support Group.
      ]]> podcasts Tue, 24 May 2005 21:14:25 GMT http://cfpodcast.libsyn.com/index.php?post_id=7304# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=7025# general Sat, 21 May 2005 03:06:54 GMT http://cfpodcast.libsyn.com/index.php?post_id=7025# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=6280# podcasts Wed, 11 May 2005 02:13:16 GMT http://cfpodcast.libsyn.com/index.php?post_id=6280# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=6182# Jerry Cahill interviews Laura Cianci
      
      
      Laura Cianci has been a Home Infusion Nurse for the past 16 years working with patients with acute illnesses. Home infusion therapy offers flexibility to both the patient and the nurse.
      • Laura has many CF patients that receive numerous antibiotics and steroids by IV.
        Patients can start home infusion care as young as 18 months
      • âI love my patients, they are the reason why I do what I doâ?
      • Laura states: âItâs important to mobilize the secretions, not only through IV antibiotics but also through postural drainageâ?
      • Laura believes CF patients need to be more pro-active in their care.
      • âI have learned to appreciate life more after working with my patients and seeing the fortitude they have for lifeâ
      • Laura states: CF has an effect on the entire family

         

      ]]> podcasts Mon, 9 May 2005 19:26:27 GMT http://cfpodcast.libsyn.com/index.php?post_id=6182# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=5974# general Fri, 6 May 2005 14:46:00 GMT http://cfpodcast.libsyn.com/index.php?post_id=5974# podcast@esiason.org podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=5464# general Tue, 3 May 2005 17:43:38 GMT http://cfpodcast.libsyn.com/index.php?post_id=5464# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=5096# Cystic Fibrosis Podcast Intro (38:05 Minutes)
      
      Jerry Cahill Interviews Michael Marten
      
      About three years ago Michael Marten received a double lung transplant at Duke University. In this interview Michael discusses his life experiences both pre and post transplant with host Jerry Cahill.

      Michael Marten Background Information

      • Age 45 -will be 46 in May
      •  Those crazy "Mist Tents"
      • 4 Years Old when diagnosed
      • Fairly normal life until graduate school (St. Johns University).
      • 1991- Graduated Grad School
      • 1993- Started to Repeated infections (Disability from work)
      • 1996- First put on oxygen
      • 1999- Put on oxygen full-time
      • 2001- Duke University Evaluation
      • 2002 -July, Michael Moves to North Carolina with Family
      • 2002-August 1, Goes to hospital for transplant
      • 3 Years Post Transplant-Still Going Strong

      Importance of Family Support Mechanism
      
      Jerry Interview Questions
      
      

      ]]> podcasts Fri, 29 Apr 2005 21:23:12 GMT http://cfpodcast.libsyn.com/index.php?post_id=5096# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=4909# general Tue, 26 Apr 2005 17:32:32 GMT http://cfpodcast.libsyn.com/index.php?post_id=4909# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=4858# general Mon, 25 Apr 2005 14:37:50 GMT http://cfpodcast.libsyn.com/index.php?post_id=4858# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=4645# QuickCast Fri, 22 Apr 2005 04:25:16 GMT http://cfpodcast.libsyn.com/index.php?post_id=4645# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=4562# Show Notes 4-20-2005

      
      1. DISCLAIMER:
      The views expressed on the Cystic Fibrosis Podcast are those of Jerry Cahill and his guests, and not necessarily of the Boomer Esiason Foundation.
      
      NOTHING ON THE CFPODCAST SHOULD BE CONSIDERED MEDICAL ADVICE.
      SUCH ADVICE CAN ONLY BE GIVEN BY A PHYSICIAN WHO IS EXPERIENCED WITH CYSTIC FIBROSIS.
      THE CONTRIBUTORS ON THIS PODCAST CANNOT BE HELD RESPONSIBLE FOR ANY DAMAGE WHICH MAY RESULT FROM USING THE INFORMATION ON THIS PODCAST WITHOUT PERMISSION OF THEIR MEDICAL DOCTOR
      
      2. Dave Rimington Intro
      Introducing Jerry Cahill and Natalie Stout
      
      3. Intro-Jerry Cahill's Cystic Fibrosis Podcast
      
      4. About Jerry:
      Jerry and Natalie discuss Jerry's background and his involvement with the Boomer Esiason Foundation.

      5. For more information on cystic fibrosis go to: www.esiason.org

      6. Email Comments/Questions to podcast@esiason.org

      ]]> podcasts Wed, 20 Apr 2005 18:47:54 GMT http://cfpodcast.libsyn.com/index.php?post_id=4562# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=4320# general Mon, 18 Apr 2005 17:57:53 GMT http://cfpodcast.libsyn.com/index.php?post_id=4320# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=43132# Laurie McDonald Podcast
      
      
      Title:
      Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference
      
      
      Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical Center in Chapel Hill, North Carolina. Laurie works closely with the medical team, patient, and family to make sure everything runs smoothly with the transplant.
      • Laurie is involved in lung, heart, liver, and kidney transplant social work.
      • Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC.
      • âFinancial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and familyâ? states Laurie
      • UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release.
      • Laurie recommends setting up a âfundraising teamâ? ASAP once you are listed to help ease the financial burden of unexpected expenses.
      • Laurieâs advice:
        1. âLive everyday /minute of your life and donât count on transplant to turn your life aroundâ?
        2. âPrepare Financiallyâ?
        3. âExercise â the surgery and recovery will go smootherâ?

        
        
        
         

      ]]> podcasts Wed, 31 Dec 1969 23:59:59 GMT http://cfpodcast.libsyn.com/index.php?post_id=43132# podcast@esiason.org No http://cfpodcast.libsyn.com/index.php?post_id=43133# Laurie McDonald Podcast
      
      
      Title:
      Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference
      
      
      Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical Center in Chapel Hill, North Carolina. Laurie works closely with the medical team, patient, and family to make sure everything runs smoothly with the transplant.
      • Laurie is involved in lung, heart, liver, and kidney transplant social work.
      • Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC.
      • âFinancial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and familyâ? states Laurie
      • UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release.
      • Laurie recommends setting up a âfundraising teamâ? ASAP once you are listed to help ease the financial burden of unexpected expenses.
      • Laurieâs advice:
        1. âLive everyday /minute of your life and donât count on transplant to turn your life aroundâ?
        2. âPrepare Financiallyâ?
        3. âExercise â the surgery and recovery will go smootherâ?

        
        
        
         

      ]]> podcasts Wed, 31 Dec 1969 23:59:59 GMT http://cfpodcast.libsyn.com/index.php?post_id=43133# podcast@esiason.org No