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Cystic Fibrosis Podcast

Title: Episode #0078 CF Travel Tips - Isabel Stenzel Byrnes

Isabel Stenzel Byrnes, 37 years old with cystic fibrosis living in Northern California, a wanderlust, and post transplant 5 years, and co-author with her sister Anabel of the book The Power of Two (www.stenzeltwins.com). Isabel has worked as a social worker and health educator and is LIVING BREATHING SUCCEEDING on a daily basis.
Isabel, along with her twin sister Anabel and family, has traveled the world visiting 12 foreign countries and 41 states in the USA. Isabel started traveling at age 8 and has also lived in Japan for one year.
- Isabel was born in Southern California, diagnosed at birth, and had an active childhood loving the outdoors and such sports as swimming, jogging, and hiking.
- Isabel graduated college from the Stanford University, competes in the Transplant Games, and most recently started playing the “bagpipes.”
- “When traveling I make sure I have the CF doctor contact info in the city I am traveling to, take extra prescriptions, wash hands a lot, drink lots of water, and ALWAYS carry-on my medications” states Isabel.
- Post transplant Isabel continues to travel and has added a mask during airplane travel.
- “I have lived a very privileged life and CF had taught me to be very disciplined and everyone with CF is a mentor to me,” states Isabel.
- Isabel’s advice; “Do not limit yourself and allow yourself to dream…”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the final of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

The Power of Two
By Isabel Stenzel Byrnes, Anabel Stenzel

"Born in 1972, twins who share this life-threatening disease give an honest portrayal of their struggle to live normal lives, their interdependence, day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival"--Provided by publisher.

More details
The Power of Two: A Twin Triumph Over Cystic Fibrosis
By Isabel Stenzel Byrnes, Anabel Stenzel
Edition: illustrated
Published by University of Missouri Press, 2007
ISBN 0826217540, 9780826217547
280 pages

The Power of Two - To Order Click Here

 

Direct download: CF-TravelTips.mp3
Category: podcasts -- posted at: 7:32 PM
Comments[0]

Title: Episode #0077 Julie Desch - Nutrition and CF
Julie Desch, 48 years old with cystic fibrosis living in Northern California, single mom with 2 fabulous children and works from home running a non-profit – New Day Wellness (www.newdaywell.org), and LIVING BREATHING SUCCEEDING LIVING on a daily basis…

Julie has realized the benefits of nutrition and exercise and at New Day Wellness Julie coach’s nutrition, fitness, stress management, and disease management to people with chronic illness – many with CF.
- Julie was born in Nebraska, diagnosed at birth; the youngest of 7 siblings, attended Stanford University, and enjoys golf, running, weight training, and reading.
- “I enjoy sharing my thoughts on nutrition, wellness, and exercise on my blog: www.sickandhappy.com, this is a great way to get the word out there”, states Julie.
- Julie’s “junk” foods include; pretzels, yogurt, frosted mini wheat’s dipped in peanut butter.
- “I am a firm believer in supplements such as fish oil, NAC, and additional vitamins but ALL are with doctors approval”, states Julie.
- Shakes and smoothies with protein added are a must have when Julie is not feeling well or needs an extra boost!
- “Eat early and eat often, and make sure you are eating lots of fruit, vegetables, and protein – I eat a lot of the right foods…” states Julie
- Gaining weight… “Get involved in exercise and especially weight training and eat a lot”, believes Julie
- Julie’s advice to others… “hope… and be compliant and aggressive to keep your lungs clear”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 11th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Direct download: Julie-Nutrition2.mp3
Category: podcasts -- posted at: 2:39 PM
Comments[1]

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