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Cystic Fibrosis Podcast

Title: Episode #0076 Paul Drury - Giving Back to the CF Community
Paul Drury, 42 years old with cystic fibrosis, happily married, working for the Cystic Fibrosis Foundation (Connecticut Chapter), a mentor to the CF community, post lung and kidney transplant, and LIVING BREATHING SUCCEEDING LIVING on a daily basis…
24/7 for the CF community is what Paul Drury is all about… not only does he live with the disease; Paul works for the CFF fundraising and speaking to many people with CF on a daily basis.

- Paul was born in Chicago, diagnosed at age 2 due to “failure to thrive”, grew up in Connecticut, attended the University of Connecticut, and is one of six children.
- “Growing up with CF was a very private matter and I jumped in to the world of CF post transplant”, states Paul.
- Paul believes; “Working for the Cystic Fibrosis Foundation let’s me give back to others and have a major impact on their life by giving them HOPE... and it makes me feel good”.
- Paul gives back at the CFF by doing fundraising for a cure, speaking at events to raise awareness, speaks to families and patients on a daily basis; “ I am like the poster adult for the CF community”, states Paul.
- Paul is also an artist and “gives back” by doing paintings (pointillism) for various CF events.
- Paul’s biggest challenge on a daily basis; “Staying healthy…”
- Paul’s advice; “Do your med.’s, exercise, nutrition, and sometimes laughter is the best medicine”.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 10th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Direct download: PaulDrury-GivingBack2.MP3
Category: podcasts -- posted at: 2:28 PM
Comments[1]

Title: Episode #0075 Living with CF is All about Teamwork

Gunnar Esiason, 17 years old with cystic fibrosis (CF), high school senior, actively involved in sports, being compliant, gearing up for college, and a team player in all aspects of his life.
- Gunnar was diagnosed at age 2 and resides in Long Island with his family.
- “CF has obviously shaped my life but does not get in the way of me being a normal teenager,” states Gunnar.
- Gunnar, like being on a football team, has a team of doctors and health care providers to make sure he is on top of his game…
- “My CF team consists of my physician, dietician, nurse, respiratory therapist, social worker, and sometimes specialist in other areas as CF affects other parts of the body,” states Gunnar.
- “Besides my medical team, my family and friends are also a big part of my team and the more they know about me the better they can help and I can win the battle with CF,” states Gunnar.
- Gunnar believes that being honest and truthful with your team is the key to succeeding in life and with cystic fibrosis.
- Gunnar’s advice to others with CF – “Always communicate with your CF team. The more info you can give the more your team can help you maintain good health especially as you become more independent and move on to college.”

This podcast was made possible through and unrestricted educational grant from EURAND to The Boomer Esiason Foundation.

Direct download: Gunnar-Teamwork.mp3
Category: podcasts -- posted at: 3:08 PM
Comments[2]

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