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Cystic Fibrosis Podcast

Title: Kristin McFall, Time Management and Staying Compliant in Adulthood

With the help of today’s therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world.

“Kristin McFall, Time Management and Staying Compliant in Adulthood,� features Kristin McFall, a 36-year-old career woman with CF. Kristin talks about succeeding in life, her career, traveling, and winning the battle with CF on a daily basis through therapy compliance. Kristin believes in the importance of “understanding your disease and partnering up with your health care team.� The podcast is now available for downloading on www.jerrycahill.com beginning on May 4th, 2007.

Kristin discusses the importance of being compliant and proactive as an adult with CF while maintaining a career and busy social life.

Highlights from the Podcast include:

  • Taking care of your health and being compliant with medical therapies are an integral part to being successful in your career as an adult with CF.
  • The key ingredients to staying healthy and having a better quality of life are: compliance to medications & therapies, exercise, nutrition, hydration, and sleep.
  • CF is a life-long illness therefore you must learn to be an expert with yourself and revel in the day!
  • t is important to maintain a partnership with your CF Center and stand up for yourself.
  • CF adults must learn to “multi-taskâ€? and “stay clearâ€? by being disciplined with your health care.
  • Kristin’s “Fabulous 4â€? tips for being compliant include: bronchodilators, Pulmozyme, airway clearance, and inhaled antibiotics.
Direct download: CF-07-23-07-KristinMcFall.mp3
Category: podcasts -- posted at: 7:19 PM
Comments[19]


“Making Fun Contagious�…

Jo Anne McKinney and Grant Prather make BIG FUN for many pediatric patients with the BIG FUN BOX. The mission statement: To share with pediatric patients and their families’ ways to use their imagination to give them comfort and fun in the midst of stressful situations. The BIG FUN BOX is filled with a stress toy, folding ruler, colored pencils, pencil sharpener, jigsaw puzzle, HeadGames, Find’ems, imagination pad, thank you notes, plastic stencil, and playing cards.

  • “The BIG FUN BOX is filled with imagination and you can let it take you wherever you want to go…â€? states Jo Anne
  • Jo Anne has spent many hours in the hospital with her son Grant, due to his cystic fibrosis, and they learned to “make their own funâ€?
  • The BIG FUN BOX is an activity box for children in the hospital with chronic illnesses (ages 7 to 12)
  • The BIG FUN BOX was launched in October 2006 and has delivered over 3,100 boxes in 9 states to 31 hospitals. “Our goal is to raise $2.0 million and deliver 100,000 BIG FUN BOXESâ€? states Jo Anne.
  • “The BFB is a great vehicle to rescue patients after being in the hospital for 5-6 days and you just find out you will be in longerâ€?
  • The BIG FUN BOX seeks corporate sponsors to bring BIG FUN to children with chronic diseases. Jo Anne needs to raise $27,000 before 1,000 boxes can go into production.
  • The BIG FUN BOX is a 501 c (3) non-profit organization.

    For more info: www.thebigfunbox.org or call: 904-730-0956
Direct download: CF-07-02-07-BigFunBoxInterview.mp3
Category: podcasts -- posted at: 7:04 PM
Comments[5]

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